… middle-income countries of the Arab Middle East region: challenges, ethical issues, and governance arrangements—a qualitative study involving biobank managers
… biobank managers regarding the challenges, ethical issues, and governance arrangements
of their biobanks… We recommend that biobank managers in the Arab Middle East form …
of their biobanks… We recommend that biobank managers in the Arab Middle East form …
Access governance for biobanks: the case of the bioshare-eu cohorts
J Kaye, L Briceño Moraia, C Mitchell, J Bell… - … and Biobanking, 2016 - liebertpub.com
… biobanks. This article analyzes the access governance arrangements of the original five
biobank … This gives greater control to the biobank managers as to who can access samples and …
biobank … This gives greater control to the biobank managers as to who can access samples and …
Practice evaluation of biobank ethics and governance: current needs and future perspectives
… on biobank ethics and governance in order to identify studies that … focus on practice evaluation
of biobank governance. … how management of incidental findings is described in biobank …
of biobank governance. … how management of incidental findings is described in biobank …
Biobank governance: heterogeneous modes of ordering and democratization
H Gottweis, G Lauss - Journal of community genetics, 2012 - Springer
… The BBMRI is only one example that shows how crucial it can be for biobank managers to
understand and position the biobank in relation to macropolitical rationalities that are able to …
understand and position the biobank in relation to macropolitical rationalities that are able to …
Networked research infrastructures and their governance: The case of biobanking
I Meijer, J Molas-Gallart, P Mattsson - Science and Public Policy, 2012 - academic.oup.com
… Until recently, the growth of biobanks has been driven … biobanks, it is the outcome of a
large project creating a distributed set of biobanks with a central organization and management …
large project creating a distributed set of biobanks with a central organization and management …
Governance of access in biobanking: The case of telethon network of genetic biobanks
…, Telethon Network of Genetic Biobanks - … and Biobanking, 2021 - liebertpub.com
… 22 through a centrally coordinated IT web-based platform which also includes a specific
tool—the Request Control Panel (RCP)—for request management. TNGB's mission is to support …
tool—the Request Control Panel (RCP)—for request management. TNGB's mission is to support …
[PDF][PDF] UK Biobank ethics and governance framework
UK Biobank - UK BIOBANK, 2007 - ukbiobank.ac.uk
… charity law and company directors under UK company law, and exercise management
oversight of UK Biobank. UK Biobank will serve as the legal custodian of the data and samples, …
oversight of UK Biobank. UK Biobank will serve as the legal custodian of the data and samples, …
[图书][B] Principles and practice in biobank governance
M Stranger - 2016 - books.google.com
… health records, biobank information management and ict for development. … the governance
of biobanks across the globe at this point in time. the governance structure of any biobank will …
of biobanks across the globe at this point in time. the governance structure of any biobank will …
Biobanking and risk assessment: a comprehensive typology of risks for an adaptive risk governance
… Just as in the health infrastructures, protection against cybersecurity threats, such as hacking
/ data leakage, should be a key element of daily biobanking management. Secure data …
/ data leakage, should be a key element of daily biobanking management. Secure data …
Accountability, governance and biobanks: the ethics and governance committee as guardian or as toothless tiger?
JV McHale - Health Care Analysis, 2011 - Springer
… referred to as biobanks or as population biobanks. These … The huge potential of such
biobanks/genetic databases for the … Biobanks raise many questions of the control of rights, of …
biobanks/genetic databases for the … Biobanks raise many questions of the control of rights, of …
相关搜索
- arab middle east region biobank managers
- ethical issues in governing biobanks
- heterogeneous modes biobank governance
- post-genomic age biobank governance
- balancing powers biobank governance
- trends and perspectives biobank governance
- principles and practice biobank governance
- governing biobanks law and practice
- special status governance of biobanks
- sub-saharan africa biobank governance
- governance of access genetic biobanks
- adaptive governance genomic biobanks
- governance challenges biobanking networks
- international governance genetic databases and biobanks
- anticipatory governance risk management
- qualitative study biobank managers