[图书][B] Ethical issues in governing biobanks: global perspectives

B Elger, N Biller-Andorno, AM Capron - 2016 - api.taylorfrancis.com
… with some of this information being combined in 'biobanks'. Managing this information in an
… frameworks that have been developed to govern biobanks. Ethicists from the Department of …

Ethical issues in governing biobanks: Global perspectives

AM Capron, N Biller-Andorno, A Mauron, B Elger - 2013 - books.google.com
… , with some of this information being combined in'biobanks'. Managing this information in an
… frameworks that have been developed to govern biobanks. Ethicists from the Department of …

[HTML][HTML] A call for global governance of biobanks

H Chen, T Pang - Bulletin of the World Health Organization, 2014 - SciELO Public Health
… In this paper, we argue that it is important to develop a governance framework at the global
level to guarantee equity, fairness and justice in biobank collaboration between developing …

Ethical Issues in Governing Biobanks: Global Perspectives

TA Faunce - JAMA, 2009 - jamanetwork.com
… His conclusion, that the creation of these biobanks is a great global … The major ethical issue
with biobanks is indeed the crisis in … Ethical Issues in Governing Biobanks provides valuable …

Biobank governance: trends and perspectives

H Gottweis, K Zatloukal - Pathobiology, 2007 - karger.com
… in which governance has become a … Biobank governance is still a relatively new field of
political-legal intervention and it will be crucial for the future of biobanks to establish governance

Biobanking in a fast moving world: an international perspective

R Hewitt, P Hainaut - Journal of the National Cancer Institute …, 2011 - academic.oup.com
biobanking globalization: the need for universal technical standards and the impact of networking
on biobank structure and governance. … In a global perspective, this approach opens up …

Biobanking strategies and regulative approaches in the EU: recent perspectives

K Beier, C Lenk - Journal of Biorepository Science for Applied …, 2015 - Taylor & Francis
… Citation43 In order to build trust, adequate mechanisms for the governance and oversight
of biobanks must be in place. The dynamic participation model has elements in common with …

[PDF][PDF] The promising future of biobanks: building a global perspective

J Camí, J Bertranpetit - Perspectives on the Future of Science and …, 2005 - jcami.eu
… The selected infrastructure for the biobank is a charitable company limited under … a global
perspective in the requirements and obligations for good research governance in biobanking. …

Biobanks, data sharing, and the drive for a global privacy governance framework

ES Dove - Journal of Law, Medicine & Ethics, 2015 - cambridge.org
… If we want a global privacy governance framework to enable efficient and responsible
sharing of data for biobanking, the Data Protection Regulation may not be the primary one on …

Practice evaluation of biobank ethics and governance: current needs and future perspectives

H Langhof, J Schwietering, D Strech - Journal of medical genetics, 2019 - jmg.bmj.com
… In order to fully meet its goal, every governance solution … biobank ethics and governance
in order to identify studies that specifically focus on practice evaluation of biobank governance