Mothers' perspectives of the experience and impact of caring for their child with a life‐limiting neurodevelopmental disability

E Courtney, G Kiernan, S Guerin… - Child: care, health …, 2018 - Wiley Online Library
… This study explored mothers' perspectives of the experiences and impact on themselves
and their family when their child has a life-limiting neurodevelopmental disability. …

Impact of caring for a school‐aged child with a disability: Understanding mothers' perspectives

H Bourke‐Taylor, L Howie… - Australian Occupational …, 2010 - Wiley Online Library
… To conclude, the participants in this study agreed that there are many factors that challenge
mothers of children with a neurodevelopmental disability, and that the cumulative effect of …

… (ENVISAGE): Parent reviewers' perspectives of a co-designed program to support parents raising a child with an early-onset neurodevelopmental disability

L Miller, G Nickson, K Pozniak, D Khan, C Imms… - … Disabilities, 2022 - Elsevier
Neurodevelopmental disabilities (NDD) encompass a diverse group of chronic, non-progressive
life… We consider ‘parents’ to be mothers, fathers and other adults who provide significant …

“It makes me a better person”: The unique experiences of parenting multiple children who experience neurodevelopmental disability

S Thompson-Hodgetts, MB Ortega, C Anthony… - … Disabilities, 2024 - Elsevier
neurodevelopmental disabilities. We explored the unique experiences of parenting multiple
children with neurodevelopmental disabilities with a focus on mothers’ … the perspectives of …

[HTML][HTML] Study of parental perceptions on health & social needs of children with neuro-developmental disability and it's impact on the family

NJR Ansari, RK Dhongade, PS Lad… - Journal of clinical and …, 2016 - ncbi.nlm.nih.gov
… a determinant of health perspective means health gains are … children with Neurodevelopmental
disabilities participated in … We found that the mother’s health and life was most affected. …

Siblings of children with neurodevelopmental disorders, a phenomenological perspective on parental perception

MP Pili, S Grumi, C Isella, L Vercellino… - … Disabilities, 2024 - Elsevier
… Quality of life of siblings of children with intellectual disability: the siblings’ perspectives
Journal of Intellectual Disability Research: JIDR, 56 (1) (2012), pp. 87-101, 10.1111/j.1365-…

[HTML][HTML] Caring for children with neurodevelopmental disability: Experiences from caretakers and health workers in rural eastern Uganda

G Namazzi, C Hanson, C Nalwadda, M Tetui… - PLoS …, 2020 - journals.plos.org
… Understanding both caretakers’ and health providers’ perspectives in caring for children with
… whereabouts of the mother of the child and she mentioned that the mother abandoned the …

[HTML][HTML] Parenting a child with a neurodevelopmental disorder

PL Rosenbaum, M Novak-Pavlic - Current Developmental Disorders …, 2021 - Springer
… It is important that readers understand the perspectives that … with children with
neurodevelopmental impairments that do, … of children with any neurodevelopmental impairment. If …

Mental health challenges during COVID-19: perspectives from parents with children with neurodevelopmental disabilities

G Currie, B Finlay, A Seth, C Roth… - … Journal of Qualitative …, 2022 - Taylor & Francis
… challenges for children and youth with neurodevelopmental disabilities (NDDs) and their …
and restrictions on mental health from the perspective of parents with children and youth. …

Parental perspective on important health outcomes of extremely preterm infants

M Jaworski, A Janvier, CJ Bourque, TA Mai-Vo… - Archives of Disease in …, 2022 - fn.bmj.com
… levels of neurodevelopmental impairment (NDI).4 To monitor neurodevelopmental outcomes,
… important outcomes in this article represent the perspectives of parents in our centre, and …