Judging the quality of care at the end of life: can proxies provide reliable information?

CJ McPherson, JM Addington-Hall - Social science & medicine, 2003 - Elsevier
… have compared patient and proxy views. The evidence suggests that proxies can reliably …
The provision of hospice and palliative care for patients at the end of life is growing. Recent …

Using caregivers-as-proxies to retrospectively assess and measure quality of dying of palliative care clients

M Bridge, DI Roughton, S Lewis… - … and Palliative …, 2002 - journals.sagepub.com
… Regarding the credibility of proxy assessments of a terminally ill person’s QOL, or, in this …
by a proxy may differ from what the client would provide, tending rather to be primarily the proxy’…

Use of family proxies in quality of life research for cancer patients at the end of life: a literature review

ST Tang, R McCorkle - Cancer investigation, 2002 - Taylor & Francis
care,” “palliative care,” or “terminal care,” cancer, and proxy. Hand searches from reference
lists of identified research reports were conducted to expand the scope of articles reviewed. …

Quality of cancer end-of-life care: discordance between bereaved relatives and professional proxies

E Bertocchi, G Artioli, E Rabitti, G Bedini… - … & Palliative Care, 2022 - spcare.bmj.com
… and professional proxies in evaluating end-of-life care in hospital. According to our findings,
we cannot use professional proxies for assessing the quality of care of dying patients or for …

[HTML][HTML] Assessing agreement between terminally ill cancer patients' reports of their quality of life and family caregiver and palliative care physician proxy ratings

JM Jones, CJ McPherson, C Zimmermann… - Journal of pain and …, 2011 - Elsevier
… of ratings of diverse proxies at multiple time points and … patients and proxy ratings made by
FCGs and palliative care physicians (PCPs), using a well-validated QoL measure for patients

Proxy perspectives regarding end‐of‐life care for persons with cancer

M Bakitas, TA Ahles, K Skalla… - … Journal of the …, 2008 - Wiley Online Library
… In the context of a novel outpatient palliative care demonstration project, 125 family proxy
after the patient's death from breast, lung, or gastrointestinal cancer. Four key quality of care

[HTML][HTML] Palliative care for people with substance use disorder and multiple problems: a qualitative study on experiences of patients and proxies

A Ebenau, B Dijkstra, C Ter Huurne, J Hasselaar… - … palliative care, 2019 - Springer
patients with SUD and multiple problems, and their proxies, experience in a PC phase. …
patients and five to ten proxies. If insufficient, more respondents would be recruited. The patients

A brief, patient-and proxy-reported outcome measure in advanced illness: validity, reliability and responsiveness of the Integrated Palliative care Outcome Scale (IPOS …

FEM Murtagh, C Ramsenthaler, A Firth… - Palliative …, 2019 - journals.sagepub.com
… version of POS, the Integrated Palliative care Outcome Scale (IPOS), 24 … patient self-report
and staff proxy-report IPOS. IPOS covers patients’ main concerns, common symptoms, patient/…

[HTML][HTML] … need for specialized palliative care in adult cancer patients–development and validation of a screening procedure based on proxy assessment by physicians …

C Ostgathe, KN Wendt, M Heckel, S Kurkowski, C Klein… - BMC cancer, 2019 - Springer
Palliative care for patients with incurable cancer” stating that “all patients must be offered
palliative care … ” screening should only be done for patients with incurable cancer [12]. As …

[HTML][HTML] The relationship between proxy agency and the medical decisions concerning pediatric patients in palliative care: a qualitative study

M Fay, J Guadarrama, T Colmenares-Roa… - BMC Palliative Care, 2021 - Springer
… (proxy agency), and of the palliative care psychologists as participants of a decision-making
process that aims to enhance the quality of life and dignity of the patients. The proxy agency …