Measuring patients' experiences with palliative care: the Consumer Quality Index Palliative Care

SJJ Claessen, AL Francke, HJ Sixma… - … & palliative care, 2012 - spcare.bmj.com
patient experiences in palliative care. In particular, it highlights patientscare experiences,
quality aspects to which patients … in which Dutch patients or relatives were asked about crucial …

Family member perspectives of deceased relatives' end-of-life options on admission to a palliative care unit in Japan

K Sato, M Miyashita, T Morita, S Tsuneto… - Supportive Care in …, 2012 - Springer
patients admitted to palliative care units did not have access to other facilities. For patients
to die at home in relative … aimed to improve outpatient care at palliative care units, thereby …

Quality of life, psychological burden, needs, and satisfaction during specialized inpatient palliative care in family caregivers of advanced cancer patients

A Ullrich, L Ascherfeld, G Marx, C Bokemeyer… - … palliative care, 2017 - Springer
palliative care of the patients was high across all subscales and we found no associations
between FCs’ satisfaction with patient care … in comparison to other relatives, these groups of …

End of life experiences and their implications for palliative care

P Fenwick, H Lovelace, S Brayne - International Journal of …, 2007 - Taylor & Francis
… It can also mean helping patients in self discovery and personal development as they …
Because of the universal experience of death, this work touches not only the patients and relatives

Patients' experiences of palliative care in the home: a phenomenological study of a Swedish sample

G Appelin, C Berterö - Cancer nursing, 2004 - journals.lww.com
patient. The main purpose of the present study has been to obtain an understanding of patients'
experiences of palliative care … of safety, for both patients as well as relatives. If there are …

What are the problems in palliative care? Results from a representative survey

L Radbruch, F Nauck, C Ostgathe, F Elsner… - Supportive care in …, 2003 - Springer
… Prior to discharge, medical devices and appliances for home care were organised for 333
patients, relatives were instructed or trained for 225, and an application for a higher level of …

Emergency calls and need for emergency care in patients looked after by a palliative care team: Retrospective interview study with bereaved relatives

CHR Wiese, A Vossen-Wellmann, HC Morgenthal… - … palliative care, 2008 - Springer
… Fifty relatives of deceased patients who had been attended by our palliative care team were
… calls made during the final six months of the patient's life, the reason for the call and the …

[HTML][HTML] How do cancer patients receiving palliative care at home die? A descriptive study

S Mercadante, A Valle, G Porzio, BV Costanzo… - Journal of pain and …, 2011 - Elsevier
… This study has shown how advanced cancer patients die at home and that palliative home
care may be helpful in allowing a death at home, particularly when relatives are actively …

Patients' sense of support within the family in the palliative care context: what are the influencing factors?

A Milberg, R Wåhlberg, B Krevers - Psycho‐Oncology, 2014 - Wiley Online Library
… interaction, of mastery and of prevailed own identity); rated less often support from family,
relatives and friends other than the closest ones; and perceived less often general well-being …

Truth may hurt but deceit hurts more: communication in palliative care

LJ Fallowfield, VA Jenkins… - Palliative …, 2002 - journals.sagepub.com
… Less than honest disclosure is seen from the moment that a patient reports … patients from
the reality of their situation usually creates even greater difficulties for patients, their relatives