Pilot testing of the 'Haemo‐QoL'quality of life questionnaire for haemophiliac children in six European countries

M Bullinger, S Von Mackensen, K Fischer… - …, 2002 - Wiley Online Library
… health-related quality of life, motivated the development of a haemophilia-specific quality
of life … In this paper the development of such an instrument and results from its pilot test are …

Development and Pilot testing of a Disease-Specific Quality of Life Questionnaire for Adult Patients with Haemophilia (Haem-A-QoL).

S Mackensen, A Gringeri, Haem-A-QoL Study Group - 2004 - ashpublications.org
quality of life questionnaire for adults with haemophilia was developed and pilot tested in
Italy. … The pilot testing showed excellent psychometric characteristics in terms of reliability and …

Individualized measurement of quality of life in older adults: development and pilot testing of a new tool

M Holzhausen, A Kuhlmey, P Martus - European Journal of Ageing, 2010 - Springer
… Within the approach pilot-tested in our studies, quality of life is conceptualized in exclusively
subjective terms as life-satisfaction, ie, the degree of overlap between one’s own goals/…

Development and pilot-testing of a health-related quality of life chronic generic module for children and adolescents with chronic health conditions: a European …

C Petersen, S Schmidt, M Power, M Bullinger - Quality of life research, 2005 - Springer
… ’ health-related quality of life by developing European instruments … as well as quantitative
changes in quality of life are expected. As a … The current paper focusses on the pilot testing and …

[PDF][PDF] Computerized symptom and quality-of-life assessment for patients with cancer part I: development and pilot testing.

DL Berry, LJ Trigg, WB Lober, BT Karras… - Oncology nursing …, 2004 - researchgate.net
Purpose/Objectives: To develop and test an innovative computerized symptom and quality-of-life
(QOL) assessment for patients with cancer who are evaluated for and treated with …

Quality of life in breast cancer adjuvant therapy: validation and pilot testing of a combination of questionnaires

M Groenvold - The Breast, 1997 - Elsevier
… content validity and the pilot testing of questionnaires for breast … In pilot testing, the
questionnaires were well accepted. Evidence … testing of quality of life questionnaires for clinical …

Validation of the European proxy KIDSCREEN-52 pilot test health-related quality of life questionnaire: first results

S Robitail, MC Simeoni, M Erhart… - Journal of Adolescent …, 2006 - Elsevier
PURPOSE: The KIDSCREEN project aims to develop a European cross-cultural generic self-administered
Health-Related Quality of Life (HRQoL) instrument for children and …

[PDF][PDF] Development and pilot-testing of a condition-specific instrument to assess the quality-of-life in children and adolescents born with esophageal atresia

M Dellenmark-Blom, K Abrahamsson, JH Quitmann… - Dis …, 2017 - academia.edu
… This study describes the pilot testing of a condition-specific health-related quality-of-life
The results were used for item generation of two age-specific pilot questionnaire versions. …

[HTML][HTML] … Care Monitor: psychometric content evaluation and pilot testing of a computer administered system for symptom screening and quality of life in adult cancer …

B Fortner, T Okon, L Schwartzberg, K Tauer… - Journal of pain and …, 2003 - Elsevier
Technology is making the routine screening of symptoms and the measurement of quality of
life (QoL) more feasible at the point of care. However, most existing symptom screening …

Hidradenitis suppurativa burden of disease tool: Pilot testing of a disease-specific quality of life questionnaire

J Pinard, RA Vleugels, C Joyce, JF Merola… - Journal of the American …, 2018 - jaad.org
To the Editor: Hidradenitis suppurativa (HS) is a chronic inflammatory condition affecting
intertriginous areas of the body that dramatically impairs quality of life (QoL) and has a …