[HTML][HTML] Prevalence of symptoms in hemophilia carriers in comparison with the general population: a systematic review

AB Hirayama, AKC da Silva, JS Rocha… - … , Transfusion and Cell …, 2019 - Elsevier
Hemophilia A (HA) or Hemophilia B (HB), respectively. The coagulation is inadequate in
a hemophilia patient… Epidemiology shows an estimated hemophilia frequency of about 1/10,000 …

Validation of the VERITAS-Pro treatment adherence scale in a Spanish sample population with hemophilia

R Cuesta-Barriuso, A Torres-Ortuño… - Patient preference …, 2017 - Taylor & Francis
… of the consequences of hemophilia, in these patients. Sample adherence to treatment
The results of this study show that patients in the Spanish sample had lower adherence to …

Differences in major bleeding events between patients with severe hemophilia A and hemophilia B: a nationwide, population-based cohort study

MY Shih, JD Wang, JD Yin, YT Tsan… - Clinical and Applied …, 2019 - journals.sagepub.com
population diagnosed with severe HA or HB from 1997 to 2013, and a … sample size of patients
with hemophilia (PWH) without inhibitors was included in the analysis. In addition, patients

Haemophilia Experiences, Results and Opportunities (HERO) Study: survey methodology and population demographics

AL Forsyth, M Gregory, D Nugent, C Garrido… - …, 2014 - Wiley Online Library
… , members of the World Federation of Hemophilia (WFH) Psychosocial Committee, national
patient organizations participating in the recruitment of patients to the study and individual …

Young adults with hemophilia in the US: demographics, comorbidities, and health status

R Curtis, J Baker, B Riske, M Ullman… - American journal of …, 2015 - Wiley Online Library
… in the hemophilia study population with the general US population demonstrated significant
… the study population aged 18–34 years compared with 1.1% in the general US population. …

[HTML][HTML] Health‐related quality of life in a cohort of adult patients with mild hemophilia A

M Walsh, D Macgregor, S Stuckless, B Barrett… - Journal of Thrombosis …, 2008 - Elsevier
… In addition, we found the HAQ quality of life measure not applicable to our population, as
neither group viewed hemophilia as affecting them, and consequently it was not useful for our …

Preferences and health-related quality-of-life related to disease and treatment features for patients with hemophilia A in a canadian general population sample

K Johnston, JM Stoffman, AT Mickle… - Patient preference …, 2021 - Taylor & Francis
hemophilia. This study used a vignette-based TTO method in a general population sample.
… experience of such health states by hemophilia patients are additionally of interest but given …

[HTML][HTML] Performing and interpreting individual pharmacokinetic profiles in patients with Hemophilia A or B: Rationale and general considerations

A Iorio, AN Edginton, V Blanchette, J Blatny… - Research and practice …, 2018 - Elsevier
… on populations comparable to the patients we are planning to apply those results to (ie,
external validity). The second is that when we compare the average PK characteristics of two or …

[HTML][HTML] … and interpreting the pharmacokinetic profiles of individual patients with hemophilia A or B using a population pharmacokinetic approach: communication from …

A Iorio, V Blanchette, J Blatny, P Collins… - Journal of Thrombosis …, 2017 - Elsevier
… We suggest educating persons with hemophilia and their caregivers to understand the
implications of individual PK profiling for choosing their treatment regimen, the importance of …

Importance of pharmacokinetics in the management of hemophilia

C Barnes - Pediatric Blood & Cancer, 2013 - Wiley Online Library
… in results obtained using population pharmacokinetic modeling with sampling at 4, 24, …
population pharmacokinetics in hemophilia reduces the need for prohibitive time point sampling