Biobank governance in the post-genomic age
H Gottweis, G Lauss - Personalized Medicine, 2010 - Future Medicine
… significant challenges for post-genomic biobank governance when attempting to … biobanking
process. With the transformation of biobanks into large-scale infrastructures of post-genomic …
process. With the transformation of biobanks into large-scale infrastructures of post-genomic …
PROPERTY REDUX. OWNERSHIP OF HUMAN TISSUE AND THE GOVERNANCE OF POST-GENOMIC RESEARCH BIOBANKS
B Schmietow - 2014 - air.unimi.it
… and societal interests in biobank research, 2) … biobank research should provide. These
foundational insights are applied to an emerging normative model beneath biobank governance …
foundational insights are applied to an emerging normative model beneath biobank governance …
Biobanks in action: new strategies in the governance of life
H Gottweis - Biobanks, 2008 - taylorfrancis.com
… through biobanks. I will argue that biobanks are not only an object or topic of governance, …
be seen as something through which the governance of life operates. Their representations …
be seen as something through which the governance of life operates. Their representations …
Democratic governance of genomics: the case of UK Biobank
T Papaioannou - New Genetics and Society, 2012 - Taylor & Francis
… research and paved the way to a “post-genomic” era. In this context, many traditional
small-refrigerator based biobanks have been transformed into sophisticated storage centers, …
small-refrigerator based biobanks have been transformed into sophisticated storage centers, …
Biobank governance: heterogeneous modes of ordering and democratization
H Gottweis, G Lauss - Journal of community genetics, 2012 - Springer
… We suggest that biobank governance consists of a multiplicity of ordering processes that
overlap to a significant degree but nevertheless operate in different domains. In fact, much can …
overlap to a significant degree but nevertheless operate in different domains. In fact, much can …
From consent to institutions: designing adaptive governance for genomic biobanks
KC O'Doherty, MM Burgess, K Edwards… - Social science & …, 2011 - Elsevier
… what such governance might look like. In … biobank governance and illustrate the enactment
of these principles in a proposed governance model for a particular population-scale biobank…
of these principles in a proposed governance model for a particular population-scale biobank…
Biobank governance: trends and perspectives
H Gottweis, K Zatloukal - Pathobiology, 2007 - karger.com
… 2 Cambon-Thomsen A: The social and ethical issues of post-genomic human biobanks.
Nat Rev Genet 2004;5:866–873. 3 Hagen HE, Carlstedt-Duke J: Building global networks for …
Nat Rev Genet 2004;5:866–873. 3 Hagen HE, Carlstedt-Duke J: Building global networks for …
Research ethics in the post‐genomic era
K Vähäkangas - Environmental and Molecular Mutagenesis, 2013 - Wiley Online Library
… regulating the functions of biobanks is lagging behind biobank development. Second, … the
management: Unclear lines of accountability and lack of consistently strong data management. …
management: Unclear lines of accountability and lack of consistently strong data management. …
Future-proofing biobanks' governance
… We have shown that biobank governance relies on a variety … room for improving biobank
governance especially in making … needed to future-proof biobank governance, to streamline the …
governance especially in making … needed to future-proof biobank governance, to streamline the …
[HTML][HTML] A call for global governance of biobanks
H Chen, T Pang - Bulletin of the World Health Organization, 2014 - SciELO Public Health
… legislative structures and governance frameworks to protect … establishment and proper running
of biobanks in low- and middle… , equitable and feasible biobank governance framework to …
of biobanks in low- and middle… , equitable and feasible biobank governance framework to …
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