Biobank governance in the post-genomic age

H Gottweis, G Lauss - Personalized Medicine, 2010 - Future Medicine
… significant challenges for post-genomic biobank governance when attempting to … biobanking
process. With the transformation of biobanks into large-scale infrastructures of post-genomic

PROPERTY REDUX. OWNERSHIP OF HUMAN TISSUE AND THE GOVERNANCE OF POST-GENOMIC RESEARCH BIOBANKS

B Schmietow - 2014 - air.unimi.it
… and societal interests in biobank research, 2) … biobank research should provide. These
foundational insights are applied to an emerging normative model beneath biobank governance

Biobanks in action: new strategies in the governance of life

H Gottweis - Biobanks, 2008 - taylorfrancis.com
… through biobanks. I will argue that biobanks are not only an object or topic of governance, …
be seen as something through which the governance of life operates. Their representations …

Democratic governance of genomics: the case of UK Biobank

T Papaioannou - New Genetics and Society, 2012 - Taylor & Francis
… research and paved the way to a “post-genomic” era. In this context, many traditional
small-refrigerator based biobanks have been transformed into sophisticated storage centers, …

Biobank governance: heterogeneous modes of ordering and democratization

H Gottweis, G Lauss - Journal of community genetics, 2012 - Springer
… We suggest that biobank governance consists of a multiplicity of ordering processes that
overlap to a significant degree but nevertheless operate in different domains. In fact, much can …

From consent to institutions: designing adaptive governance for genomic biobanks

KC O'Doherty, MM Burgess, K Edwards… - Social science & …, 2011 - Elsevier
… what such governance might look like. In … biobank governance and illustrate the enactment
of these principles in a proposed governance model for a particular population-scale biobank

Biobank governance: trends and perspectives

H Gottweis, K Zatloukal - Pathobiology, 2007 - karger.com
… 2 Cambon-Thomsen A: The social and ethical issues of post-genomic human biobanks.
Nat Rev Genet 2004;5:866–873. 3 Hagen HE, Carlstedt-Duke J: Building global networks for …

Research ethics in the postgenomic era

K Vähäkangas - Environmental and Molecular Mutagenesis, 2013 - Wiley Online Library
… regulating the functions of biobanks is lagging behind biobank development. Second, … the
management: Unclear lines of accountability and lack of consistently strong data management. …

Future-proofing biobanks' governance

F Gille, E Vayena, A Blasimme - European Journal of Human Genetics, 2020 - nature.com
… We have shown that biobank governance relies on a variety … room for improving biobank
governance especially in making … needed to future-proof biobank governance, to streamline the …

[HTML][HTML] A call for global governance of biobanks

H Chen, T Pang - Bulletin of the World Health Organization, 2014 - SciELO Public Health
… legislative structures and governance frameworks to protect … establishment and proper running
of biobanks in low- and middle… , equitable and feasible biobank governance framework to …