… as for newsletters for the German support group for primary immunodeficiency dsai eV,
and (viii) giving presentations and presenting posters at national and international meetings. …

… other national registries revealed some differences: the frequency of severe combined
immunodeficiency … The present paper reports data on primary specific immunodeficiencies that …

… variable immunodeficiencies (CVIDs, 14%) is lower than reported by national registries in
other … The distribution of primary immunodeficiencies (PIDs) varied significantly across distinct …

… The aim of this study is to describe PID epidemiology in Russia, using a national registry. …
specialists in the field of primary immunodeficiencies in Russia. The registry is a secure on-line …

The Swiss National Registry for Primary Immunodeficiency Disorders (PID) was established
in 2008, constituting a nationwide network of paediatric and adult departments involved in …

… The national registry was set up to analyse the epidemiology and natural course of primary
immunodeficiencies, assess the diagnostic delay for a single PID, identify factors affecting the …

… Since the first report on 76 patients registered in the Kuwait National Primary Immunodeficiency
Registry in 2008 [23] , several studies have been published illustrating the advances of …

… In conclusion, the role of primary immunodeficiency registries is fundamental, not only to
obtain epidemiological data on these pathologies, but also, and perhaps more importantly, to …

… Unlike most developed countries which established national registries for PIDs, a few developing
… In Tunisia, a national registry did not exist in a practical way until 1988 when a working …

Unsurprisingly, most of the genetic diagnoses were obtained in the last 10 years (see the
Methods section and Fig E1 in this article’s Online Repository at www. jacionline. org). The …