Balancing openness with Indigenous data sovereignty: An opportunity to leave no one behind in the journey to sequence all of life
AM Mc Cartney, J Anderson, L Liggins… - Proceedings of the …, 2022 - National Acad Sciences
The field of genomics has benefited greatly from its “openness” approach to data sharing.
However, with the increasing volume of sequence information being created and stored and …
However, with the increasing volume of sequence information being created and stored and …
Creating space for Indigenous perspectives on access and benefit‐sharing: Encouraging researcher use of the Local Contexts Notices
L Liggins, M Hudson, J Anderson - 2021 - Wiley Online Library
A recent Molecular Ecology editorial made a proactive statement of support for the “Nagoya
Protocol” and the principle of benefit‐sharing by requiring authors to provide a “Data …
Protocol” and the principle of benefit‐sharing by requiring authors to provide a “Data …
Rights, interests and expectations: Indigenous perspectives on unrestricted access to genomic data
Addressing Indigenous rights and interests in genetic resources has become increasingly
challenging in an open science environment that promotes unrestricted access to genomic …
challenging in an open science environment that promotes unrestricted access to genomic …
[HTML][HTML] Multilateral benefit-sharing from digital sequence information will support both science and biodiversity conservation
Open access to sequence data is a cornerstone of biology and biodiversity research, but has
created tension under the United Nations Convention on Biological Diversity (CBD). Policy …
created tension under the United Nations Convention on Biological Diversity (CBD). Policy …
[HTML][HTML] Using indigenous standards to implement the CARE principles: Setting expectations through tribal research codes
Biomedical data are now organized in large-scale databases allowing researchers
worldwide to access and utilize the data for new projects. As new technologies generate …
worldwide to access and utilize the data for new projects. As new technologies generate …
Including digital sequence data in the Nagoya Protocol can promote data sharing
The Nagoya Protocol (NP), a legal framework under the Convention on Biological Diversity
(CBD), formalises fair and equitable sharing of benefits arising from biological diversity. It …
(CBD), formalises fair and equitable sharing of benefits arising from biological diversity. It …
[图书][B] Governing digitally integrated genetic resources, data, and literature: global intellectual property strategies for a redesigned microbial research commons
JH Reichman, PF Uhlir, T Dedeurwaerdere - 2016 - books.google.com
The free exchange of microbial genetic information is an established public good, facilitating
research on medicines, agriculture, and climate change. However, over the past quarter …
research on medicines, agriculture, and climate change. However, over the past quarter …
[HTML][HTML] Data sharing in the post-genomic world: the experience of the International Cancer Genome Consortium (ICGC) Data Access Compliance Office (DACO)
The scientific community, research funders, and governments have repeatedly recognized
the importance of open access to genomic data for scientific research and medical progress …
the importance of open access to genomic data for scientific research and medical progress …
Global biodiversity research tied up by juridical interpretations of access and benefit sharing
D Neumann, AV Borisenko, JA Coddington… - Organisms Diversity & …, 2018 - Springer
The toolbox of instruments regulating access, transfer and use of biological material is
currently re-equipped: the Nagoya Protocol was initiated to provide a legal framework to the …
currently re-equipped: the Nagoya Protocol was initiated to provide a legal framework to the …
Global commitments to conserving and monitoring genetic diversity are now necessary and feasible
Global conservation policy and action have largely neglected protecting and monitoring
genetic diversity—one of the three main pillars of biodiversity. Genetic diversity (diversity …
genetic diversity—one of the three main pillars of biodiversity. Genetic diversity (diversity …