Balancing openness with Indigenous data sovereignty: An opportunity to leave no one behind in the journey to sequence all of life

AM Mc Cartney, J Anderson, L Liggins… - Proceedings of the …, 2022 - National Acad Sciences
The field of genomics has benefited greatly from its “openness” approach to data sharing.
However, with the increasing volume of sequence information being created and stored and …

Creating space for Indigenous perspectives on access and benefit‐sharing: Encouraging researcher use of the Local Contexts Notices

L Liggins, M Hudson, J Anderson - 2021 - Wiley Online Library
A recent Molecular Ecology editorial made a proactive statement of support for the “Nagoya
Protocol” and the principle of benefit‐sharing by requiring authors to provide a “Data …

Rights, interests and expectations: Indigenous perspectives on unrestricted access to genomic data

M Hudson, NA Garrison, R Sterling, NR Caron… - Nature Reviews …, 2020 - nature.com
Addressing Indigenous rights and interests in genetic resources has become increasingly
challenging in an open science environment that promotes unrestricted access to genomic …

[HTML][HTML] Multilateral benefit-sharing from digital sequence information will support both science and biodiversity conservation

AH Scholz, J Freitag, CHC Lyal, R Sara… - Nature …, 2022 - nature.com
Open access to sequence data is a cornerstone of biology and biodiversity research, but has
created tension under the United Nations Convention on Biological Diversity (CBD). Policy …

[HTML][HTML] Using indigenous standards to implement the CARE principles: Setting expectations through tribal research codes

SR Carroll, I Garba, R Plevel, D Small-Rodriguez… - Frontiers in …, 2022 - frontiersin.org
Biomedical data are now organized in large-scale databases allowing researchers
worldwide to access and utilize the data for new projects. As new technologies generate …

Including digital sequence data in the Nagoya Protocol can promote data sharing

J Ambler, PK Dearden, P Wilcox, M Hudson… - Trends in …, 2021 - cell.com
The Nagoya Protocol (NP), a legal framework under the Convention on Biological Diversity
(CBD), formalises fair and equitable sharing of benefits arising from biological diversity. It …

[图书][B] Governing digitally integrated genetic resources, data, and literature: global intellectual property strategies for a redesigned microbial research commons

JH Reichman, PF Uhlir, T Dedeurwaerdere - 2016 - books.google.com
The free exchange of microbial genetic information is an established public good, facilitating
research on medicines, agriculture, and climate change. However, over the past quarter …

[HTML][HTML] Data sharing in the post-genomic world: the experience of the International Cancer Genome Consortium (ICGC) Data Access Compliance Office (DACO)

Y Joly, ES Dove, BM Knoppers, M Bobrow… - PLoS computational …, 2012 - journals.plos.org
The scientific community, research funders, and governments have repeatedly recognized
the importance of open access to genomic data for scientific research and medical progress …

Global biodiversity research tied up by juridical interpretations of access and benefit sharing

D Neumann, AV Borisenko, JA Coddington… - Organisms Diversity & …, 2018 - Springer
The toolbox of instruments regulating access, transfer and use of biological material is
currently re-equipped: the Nagoya Protocol was initiated to provide a legal framework to the …

Global commitments to conserving and monitoring genetic diversity are now necessary and feasible

S Hoban, MW Bruford, WC Funk, P Galbusera… - Bioscience, 2021 - academic.oup.com
Global conservation policy and action have largely neglected protecting and monitoring
genetic diversity—one of the three main pillars of biodiversity. Genetic diversity (diversity …