Cerebral palsy registries

C Cans, G Surman, V McManus, D Coghlan… - Seminars in pediatric …, 2004 - Elsevier
Cerebral palsy (CP) registers appear to be appropriate tools for answering questions
regarding the prevalence and characteristics of this common childhood disability. Registers …

An international survey of cerebral palsy registers and surveillance systems

S Goldsmith, S McIntyre… - … Medicine & Child …, 2016 - Wiley Online Library
Aim To describe cerebral palsy (CP) surveillance programmes and identify similarities and
differences in governance and funding, aims and scope, definition, inclusion/exclusion …

Epidemiology of cerebral palsy

C Cans, J De-la-Cruz, MA Mermet - Paediatrics and child health, 2008 - Elsevier
Definition of cerebral palsy (CP) has become more precise in recent years and, even if CP
remains an umbrella term, a simple classification system for CP types has been proposed …

Completeness and correctness of cerebral palsy diagnoses in two health registers: implications for estimating prevalence

SJ Hollung, T Vik, R Wiik, IJ Bakken… - … Medicine & Child …, 2017 - Wiley Online Library
Aim To assess completeness and correctness of cerebral palsy (CP) diagnoses in the
Cerebral Palsy Register of Norway (CPRN) and the Norwegian Patient Register (NPR), and …

The cerebral palsy research registry: development and progress toward national collaboration in the United States

DS Hurley, T Sukal-Moulton, ME Msall… - Journal of child …, 2011 - journals.sagepub.com
Cerebral palsy is the most common neurodevelopmental motor disability in children. The
condition requires medical, educational, social, and rehabilitative resources throughout the …

UKCP: a collaborative network of cerebral palsy registers in the United Kingdom

G Surman, S Bonellie, J Chalmers… - Journal of Public …, 2006 - academic.oup.com
Cerebral palsy (CP) is a relatively rare condition with enormous social and financial impact.
Information about CP is not routinely collected in the United Kingdom. We have pooled non …

Estimating the prevalence of cerebral palsy in Taiwan: a comparison of different case definitions

MJ Chang, HI Ma, TH Lu - Research in developmental disabilities, 2015 - Elsevier
The estimated prevalence of cerebral palsy (CP) worldwide ranged from 0.74 to 3.6 per
1000 live births according to different studies, which may be due to different data sources …

Surveillance of cerebral palsy in Europe: a collaboration of cerebral palsy surveys and registers

C Cans - Developmental Medicine & Child Neurology, 2000 - Wiley Online Library
Although cerebral palsy (CP) is the most common cause of motor deficiency in young
children, it occurs in only 2 to 3 per 1000 live births. In order to monitor prevalence rates …

Comparison of survival in cerebral palsy between countries

RM Shavelle, DJ Straus, SM Day - Developmental Medicine and …, 2001 - cambridge.org
SIR–We were pleased to read the carefully detailed process by which the Surveillance of
Cerebral Palsy in Europe (SCPE) collaborative network is standardizing the definition of CP …

Global prevalence of cerebral palsy: A systematic analysis

S McIntyre, S Goldsmith, A Webb… - … Medicine & Child …, 2022 - Wiley Online Library
Aim To determine trends and current estimates in regional and global prevalence of cerebral
palsy (CP). Method A systematic analysis of data from participating CP registers/surveillance …