Achieving consensus on priority items for paediatric palliative care outcome measurement: Results from a modified Delphi survey, engagement with a children's …

L Coombes, D Harðardóttir, D Braybrook… - Palliative …, 2023 - journals.sagepub.com
Background: There is no validated outcome measure for use in children's palliative care
outside sub-Saharan Africa. Stakeholders must be involved in the development of such …

Introducing a lexicon of terms for paediatric palliative care

S Spicer, ME Macdonald, D Davies… - Paediatrics & child …, 2015 - academic.oup.com
The nascent field of paediatric palliative care (PPC) has evolved significantly over a short
period of time, as has its terminology. With an emerging literature of program descriptions …

Delphi method to develop a palliative care tool for children and families in sub-Saharan Africa

K Chinyundo, J Casas, R Bank, C Abenawe… - Journal of Pain and …, 2022 - Elsevier
Abstract Context In sub-Saharan Africa, there is no standardized approach to pediatric
palliative care assessment. Because of this, there is a critical demand for evidence-based …

[PDF][PDF] Background Report to the Paediatric Addendum to the Palliative Care Service Development Guidelines

PC Australia - 2018 - palliativecare.org.au
This Background Report is a supporting document to the Paediatric Addendum to Palliative
Care Australia's Service Development Guidelines (December 2018). It provides evidence …

First requests for a regional pediatric palliative care team: A prospective and observational study

L Marty, F Bernard, M Pierre… - Archives de Pediatrie …, 2017 - europepmc.org
Results We gathered 67 requests, 61 relating to patients. The median age at the request
was 49.8 months (range: 2.3-145). The original pattern was multiple: multidisciplinary …

328 A review of expert recommendations on end-of-life issues in pediatric intensive care setting

S Janković, M Ćurković, D Vrkić, A Jozepović… - Archives of Disease in …, 2021 - adc.bmj.com
One of the most ethically challenging issues in modern medicine are the ones related to end-
of-life care. This is especially evident in intensive care setting where healthcare …

Trends in Pediatric Palliative Care Research (TPPCR) 2022; Issue# 03: Commentary on Turner et al.

P Okara - osf.io
OSF Preprints | Trends in Pediatric Palliative Care Research (TPPCR) 2022; Issue #03:
Commentary on Turner et al. OSF logo OSF PREPRINTS My Preprints Add a Preprint Search …

P0445/# 701: IDENTIFYING COMMON BARRIERS AROUND THE LIMITATION OF TREATMENT AGREEMENT (LOTA) DECISIONS AMONG PAEDIATRIC …

M Ali, F Rajah - Pediatric Critical Care Medicine, 2021 - journals.lww.com
Aims & Objectives: Aims: To identify the common barriers as perceived by the paediatric
health professionals with regards to having the end of life care discussions. Objectives: To …

The clinical practice guideline palliative care for children and other strategies to enhance shared decision-making in pediatric palliative care; pediatricians' critical …

D Dreesens, L Veul, J Westermann, N Wijnands… - BMC pediatrics, 2019 - Springer
Background Because of practice variation and new developments in palliative pediatric
care, the Dutch Association of Pediatrics decided to develop the clinical practice guideline …

[PDF][PDF] Research Priorities in Pediatric Palliative Care

MS Weaver, MD Anghelescu, B Mandrell, BJ MA - academia.edu
Objective—To synthesize the perspectives of a broad range of pediatric palliative care
(PPC) clinicians and parents to formulate a consensus on the prioritization of the PPC …