Rethinking the 'right not to know'

R McDougall - Monash bioethics review, 2004 - Springer
The idea that an individual has a 'right not to know'genetic information about himself or
herself is entrenched in both the policy sphere and the genetic counselling ethos. In this …

[HTML][HTML] The right to know and the right not to know revisited: Part one

R Brownsword, J Wale - Asian bioethics review, 2017 - Springer
Prompted by developments in human genetics, a recurrent bioethical question concerns a
person's 'right to know'and 'right not to know'about genetic information held that is …

Allowing agency: An ethical model for communicating personal genetic information

C Rehmann-Sutter - … Dilemmas: Ethics of Genetic Prognosis after …, 2009 - books.google.com
The increasing availability of personal genetic information (a term that we will have to
define) creates situations containing challenging, sometimes even morally coercive …

From a right to a preference: rethinking the right to genomic ignorance

L Dive - The Journal of Medicine and Philosophy: A Forum for …, 2021 - academic.oup.com
The “right not to know” has generated significant discussion, especially regarding genetic
information. In this paper, I argue that this purported right is better understood as a …

To know or not to know? Genetic ignorance, autonomy and paternalism

J Wilson - Bioethics, 2005 - Wiley Online Library
This paper examines some arguments which deny the existence of an individual right to
remain ignorant about genetic information relating to oneself–often referred to as 'a right to …

[HTML][HTML] The emergence of an ethical duty to disclose genetic research results: international perspectives

BM Knoppers, Y Joly, J Simard… - European Journal of …, 2006 - nature.com
The last decade has witnessed the emergence of international ethics guidelines discussing
the importance of disclosing global and also, in certain circumstances, individual genetic …

The right to genetic ignorance confirmed

T Takala - Bioethics, 1999 - Wiley Online Library
One of the much debated issues around the evolving human genetics is the question of the
right to know versus the right not to know. The core question of this theme is whether an …

Confidentiality in genetic testing

M Parker - American Journal of Bioethics, 2001 - Taylor & Francis
The fact that genetic information about one person can be of value to others poses an
important challenge to the primacy of respect for the principle of autonomy in medicine …

Medical Ethics: The right not to know—worthy of preservation any longer? An ethical perspective

T Austad - Clinical genetics, 1996 - Wiley Online Library
The right not to know - worthy of preservation any longer? An ethical perspective Page 1 Clin
Grnrt 1996: 50: X5-88 Prirrred iri Drrrinrzrk All rights rivenecl Cop vri,qh f 0 Mirn k r,qaard I 996 …

Privacy and the right not to know: a plea for conceptual clarity

G Laurie - The Right to Know and the Right Not to Know: Genetic …, 2014 - books.google.com
The contribution ofthis chapter is two-fold. First, it argues for conceptual clarity in the debates
about the right to know and the right not to know by suggesting that the most appropriate …