An international survey of cerebral palsy registers and surveillance systems

S Goldsmith, S McIntyre… - … Medicine & Child …, 2016 - Wiley Online Library
Aim To describe cerebral palsy (CP) surveillance programmes and identify similarities and
differences in governance and funding, aims and scope, definition, inclusion/exclusion …

What constitutes cerebral palsy in the twenty‐first century?

H Smithers‐Sheedy, N Badawi, E Blair… - … Medicine & Child …, 2014 - Wiley Online Library
Aim Determining inclusion/exclusion criteria for cerebral palsy (CP) surveillance is
challenging. The aims of this paper were to (1) define inclusion/exclusion criteria that have …

Cerebral palsy registries

C Cans, G Surman, V McManus, D Coghlan… - Seminars in pediatric …, 2004 - Elsevier
Cerebral palsy (CP) registers appear to be appropriate tools for answering questions
regarding the prevalence and characteristics of this common childhood disability. Registers …

Completeness and correctness of cerebral palsy diagnoses in two health registers: implications for estimating prevalence

SJ Hollung, T Vik, R Wiik, IJ Bakken… - … Medicine & Child …, 2017 - Wiley Online Library
Aim To assess completeness and correctness of cerebral palsy (CP) diagnoses in the
Cerebral Palsy Register of Norway (CPRN) and the Norwegian Patient Register (NPR), and …

Cerebral palsy registers around the world: A survey

S Goldsmith, H Smithers‐Sheedy… - … Medicine & Child …, 2024 - Wiley Online Library
Aim To provide a description of cerebral palsy (CP) registers globally, identify which aim to
report on CP epidemiology, and report similarities and differences across topics of …

European and Australian cerebral palsy surveillance networks working together for collaborative research

E Sellier, S McIntyre, H Smithers-Sheedy… - …, 2020 - thieme-connect.com
Aims This study aims to describe and compare goals and methods, characteristics of
children with cerebral palsy (CP), and to compare prevalence of CP in the Surveillance of …

[HTML][HTML] Systematic review of cerebral palsy registries/surveillance groups: relationships between registry characteristics and knowledge dissemination

DS Hurley, T Sukal-Moulton… - … journal of physical …, 2015 - ncbi.nlm.nih.gov
The aims of this study were to provide a comprehensive summary of the body of research
disseminated by Cerebral Palsy (CP) registries and surveillance programs from January …

Surveillance of cerebral palsy in Europe: a collaboration of cerebral palsy surveys and registers

C Cans - Developmental Medicine & Child Neurology, 2000 - Wiley Online Library
Although cerebral palsy (CP) is the most common cause of motor deficiency in young
children, it occurs in only 2 to 3 per 1000 live births. In order to monitor prevalence rates …

Validity and reliability of the guidelines of the surveillance of cerebral palsy in Europe for the classification of cerebral palsy

M Gainsborough, G Surman, G Maestri… - … medicine & child …, 2008 - Wiley Online Library
The validity and reliability of the guidelines of the Surveillance of Cerebral Palsy in Europe
(SCPE) for the classification of cerebral palsy (CP) were tested by administering 10 written …

Interrater reliability study of cerebral palsy diagnosis, neurological subtype, and gross motor function

E Sellier, V Horber… - … medicine & child …, 2012 - Wiley Online Library
Aim To evaluate the interrater reliability of the inclusion in registries and classification of
children with cerebral palsy (CP). Method Two studies were conducted. In study 1, 12 …