THU0037 validation of a disease-specific patient-reported outcome measure for Arabic patients with systemic lupus erythematosus

Y El Miedany, M El Gaafary, S Sayed… - Annals of the Rheumatic …, 2014 - ard.bmj.com
Background In comparison to the common chronic diseases, SLE has poorer outcomes with
negative impact on the patient9s life. Therefore, it became mandatory not only to recognize …

LupusQoL-US benchmarks for US patients with systemic lupus erythematosus

M Jolly, SA Pickard, RA Mikolaitis, RA Rodby… - The Journal of …, 2010 - jrheum.org
Objective. The LupusQoL-US instrument was recently validated in the US. We studied the
benchmarks for a US patient cohort with systemic lupus erythematosus (SLE) and relevant …

Turkish lupusPRO: cross-cultural validation study for lupus

A Kaya, B Goker, ES Cura, ME Tezcan, A Tufan… - Clinical …, 2014 - Springer
LupusPRO is a disease-targeted patient-reported outcome measure that was developed
and validated from and among US patients with systemic lupus erythematosus (SLE). We …

Quality of life in systemic lupus erythematosus patients during more and less active disease states: differential contributors to mental and physical health

PL Dobkin, D Da Costa, M Dritsa… - Arthritis Care & …, 1999 - Wiley Online Library
Objective To identify determinants of mental and physical health as a function of disease
state in patients with systemic lupus erythematosus (SLE). Methods A sample of 129 SLE …

Patient-Reported Outcomes in SLE

L McMorrow, J Leung, V Strand, AHJ Kim - Outcome Measures and …, 2021 - Springer
Patient-reported outcomes are questionnaires designed to measure health-related quality of
life (HRQoL). This is important to measure in SLE because the burden of symptoms that …

ROLE OF PATIENT-REPORTED OUTCOME MEASURES (PROMs) IN SYSTEMIC LUPUS ERYTHEMATOSUS: A SYSTEMATIC REVIEW

JKT Ecalne, LAS Trinidad… - … Journal of Health …, 2022 - li05.tci-thaijo.org
Patient-reported outcomes (PROs) throughout care with individual patients present a critical
function in the overall clinical decision-making, which leads to the optimization of the …

Patient-reported outcome measures for systemic lupus erythematosus clinical trials: a content validity and psychometric performance review

L Humphrey, L Heron, C Pilling… - Value in …, 2013 - valueinhealthjournal.com
Objectives Patients with Systemic Lupus Erythematosus (SLE) experience unmet medical
needs and many inflammatory symptoms resulting in humanistic and economic burden. This …

The validity and reliability of systemic lupus erythematosus quality of life questionnaire (L-QoL) in a Turkish population

MT Duruöz, C Unal, CS Toprak, İ Sezer, F Yilmaz… - Lupus, 2017 - journals.sagepub.com
Background Systemic lupus erythematosus (SLE) may have a profound impact on quality of
life. There is increasing interest in measuring quality of life in lupus patients. The purpose of …

[PDF][PDF] Subscale analysis of quality of life in patients with systemic lupus erythematosus: association with depression, fatigue, disease activity and damage

ST Choi, JI Kang, IH Park, YW Lee… - Clinical and …, 2012 - clinexprheumatol.org
Objectives The quality of life (QoL) in systemic lupus erythematosus (SLE) patients may be
affected by psychological features and disease status. We evaluated the QoL of SLE …

Assessment of disease activity, damage and quality of life in systemic lupus erythematosus: new aspects

A Nuttall, DA Isenberg - Best practice & research Clinical rheumatology, 2013 - Elsevier
Systemic lupus erythematosus (SLE) is a multisystem auto-immune disorder that results from
a combination of genetic, environmental and hormonal factors. The heterogeneity of disease …