Voluntary, lay genetic support groups have become important providers of supportive,
educational, and social services for clients and families who face genetic disorders. A survey …

This research sought information about the services provided by genetic support groups,
their members' experiences in obtaining genetic and related services, and members' …

Genetic counseling for parents of children with a genetic disorder is only the beginning of
needed support services. One important member of the health team is the genetic support …

Support groups have begun to take an active role in advocating for the planning,
development, and delivery of effective services for individuals and families affected by …

Professionals working within pediatric clinics have a challenge to broaden their clinical
focus on children with genetic disorders by actively collaborating with genetic support …

This article offers a brief history of genetic support groups, a description of their various
functions, and ways in which nurses can collaborate with these voluntary genetic …

Most studies of outcomes of genetic counseling have focused on client knowledge,
reproductive plans and behavior, or satisfaction. Other measures of the “value” of genetic …

A self-administered questionnaire was mailed to 325 genetic counseling professionals in the
southeastern United States and 204 (63%) completed it. Among those responding, 32 …

An unprecedented increase has occurred in demand for genetic counseling services during
the current decade. This study examined the complex issue of who currently provides …

For health care professionals (HCPs), patients and families alike, genetic advocacy groups
play an important role in dealing with genetic diseases and birth defects. The Genetic …