Genetic research on pediatric stored tissue samples raises specific ethical questions that
differ from those raised when adults are the donors. To investigate opinions on this matter …

In the midst of scientific and ethical discourse about how best to obtain informed consent for
large-scale molecular epidemiologic and genomics research involving the establishment …

Objective: As sequencing of the human genome is completed, there is a need for population-
based research to assess frequencies of genetic variants and their associations with human …

Internationally and regionally, legal and ethical instruments acknowledge the sensitivity of
genetic material. While the socio-ethical and legal issues surrounding clinical genetics have …

Background: Genetics research is controversial in Native American communities, and the
disposition and ownership of biological specimens are central issues. Within Native …

Background: Many studies have explored public perspectives on when and how to provide
informed consent to biobank research and when to get feedback on research results. Little …

Many biomedical advances—particularly advances involving genetics—have only been
achieved through research with human biological materials. 1 Such research has been …

There has been considerable debate over a number of years on the ethical issues raised by
the research uses to which archival human material can be put. Material of this nature has …