Underutilization of specimens in biobanks: an ethical as well as a practical concern?

RJ Cadigan, E Juengst, A Davis, G Henderson - Genetics in Medicine, 2014 - nature.com
CONCLUSION Together, these commitments provide a framework for thinking about
underutilization as a professional ethical issue in biobanking. None alone captures the full …

Ethical and legal issues in research involving human subjects: do you want a piece of me?

MB Kapp - Journal of clinical pathology, 2006 - jcp.bmj.com
The conduct of biomedical research involving the participation of human beings implicates a
variety of ethical concerns pertaining to such values as dignity, bodily integrity, autonomy …

Consent to the use of stored DNA for genetics research: a survey of attitudes in the Jewish population

MD Schwartz, K Rothenberg, L Joseph… - American journal of …, 2001 - Wiley Online Library
The use of anonymized stored tissue is a routine practice in genetic research. Investigators
who utilize stored samples are neither required nor able to obtain informed consent before …

Potential harms, anonymization, and the right to withdraw consent to biobank research

S Eriksson, G Helgesson - European Journal of Human Genetics, 2005 - nature.com
This paper discusses the potential harms involved in biobank research and how ethical
review, informed consent, withdrawals, and anonymization of samples should be handled in …

Public expectations for return of results from large-cohort genetic research

J Murphy, J Scott, D Kaufman, G Geller… - The American Journal …, 2008 - Taylor & Francis
The National Institutes of Health and other federal health agencies are considering
establishing a national biobank to study the roles of genes and environment in human …

Genetic research involving human biological materials: a need to tailor consent forms.

SC Hull, H Gooding, AP Klein… - IRB: Ethics & …, 2004 - search.ebscohost.com
The article discusses the need to tailor consent forms for the genetic research involving
human biological materials. The consent forms researchers evaluated are characterized by …

Disclosure of genetic information obtained through research

KA Quaid, NM Jessup, EM Meslin - Genetic testing, 2004 - liebertpub.com
The rapid expansion of information and knowledge of genetics has implications for the
question of whether, and under what circumstances, information discovered in the course of …

Considerations for returning research results to culturally diverse participants and families of decedents

G Nanibaa'A - Journal of Law, Medicine & Ethics, 2015 - cambridge.org
As genomic medicine advances and immense amounts of data are generated that may
potentially affect human health, there is increasing concern around which of these results …

[HTML][HTML] Should genetic findings from genome research be reported back to the participants?

KS Steinsbekk, B Solberg - Tidsskrift for Den norske legeforening, 2012 - tidsskriftet.no
Background. Today, new and powerful sequencing technology is being used in biomedical
research. In parallel, an intense ethical debate has arisen regarding the handling of the …

Population genomics and research ethics with socially identifiable groups

JL McGregor - Journal of law, medicine & ethics, 2007 - cambridge.org
The genetic revolution is well underway, with genetic research and knowledge expanding at
an exponential rate. Much of the new genetics research is focused on population groups …