The law of genetic privacy: applications, implications, and limitations

EW Clayton, BJ Evans, JW Hazel… - Journal of Law and the …, 2019 - academic.oup.com
Recent advances in technology have significantly improved the accuracy of genetic testing
and analysis, and substantially reduced its cost, resulting in a dramatic increase in the …

The idea of a right to genetic privacy

T Spaak - Juridisk tidskrift, 2008 - papers.ssrn.com
The question I want to consider in this article is whether the idea of a right to genetic privacy
can be a useful analytical tool in the analysis of moral or legal problems that concern genetic …

[图书][B] Genetic Privacy: An Evaluation of the Ethical and Legal Landscape

TS Kaan, CW Ho - 2013 - books.google.com
Privacy is an unwieldy concept that has eluded an essentialised definition despite its
centrality and importance in the body of bioethics. The compilation presented in this volume …

Genomics, inconvenient truths and accountability

J Lunshof, R Chadwick - The Right to Know and the Right Not to …, 2014 - books.google.com
Recently, genetics and genomics have become consumer products, moving beyond the
research lab and outside the clinic into the daily life of modern citizens. Direct-to-consumer …

Rethinking the 'right not to know'

R McDougall - Monash bioethics review, 2004 - Springer
The idea that an individual has a 'right not to know'genetic information about himself or
herself is entrenched in both the policy sphere and the genetic counselling ethos. In this …

Democracy and genetic privacy: The value of bodily integrity

L Beckman - Medicine, Health Care and Philosophy, 2005 - Springer
The right to genetic privacy is presently being incorporated in legal systems all over the
world. It remains largely unclear however what interests and values this right serves to …

The right not to know: an autonomy based approach

R Andorno - Journal of medical ethics, 2004 - jme.bmj.com
The emerging international biomedical law tends to recognise the right not to know one's
genetic status. However, the basis and conditions for the exercise of this right remain …

The right to genetic ignorance confirmed

T Takala - Bioethics, 1999 - Wiley Online Library
One of the much debated issues around the evolving human genetics is the question of the
right to know versus the right not to know. The core question of this theme is whether an …

In defence of ignorance: genetic information and the right not to know

GT Laurie - European journal of health law, 1999 - JSTOR
This article considers two concepts which have for a long time received short shrift in the
field of medical law and ethics: ignorance and privacy. By'ignorance'is not meant wilful …

Ignorance, information and autonomy

J Harris, K Keywood - Theoretical medicine and bioethics, 2001 - Springer
People have a powerful interest in geneticprivacy and its associated claim to ignorance, and
some equally powerful desires to beshielded from disturbing information are oftenvoiced …