Challenging medical-legal norms: the role of autonomy, confidentiality, and privacy in protecting individual and familial group rights in genetic information

GT Laurie - Journal of Legal Medicine, 2001 - Taylor & Francis
Much ink has been spilled discussing the ramifi cations of genetic advances for individuals,
communities, and society at large. A central concern has been the problem of regulating …

Is there a duty to remain in ignorance?

I Brassington - Theoretical medicine and bioethics, 2011 - Springer
Questions about information inform many debates in bioethics. One of the reasons for this is
that at least some level of information is taken by many to be a prerequisite of valid consent …

The reuse of genetic information in research and informed consent

D Lorenzo, M Esquerda, M Bofarull, V Cusi… - European Journal of …, 2023 - nature.com
Important advances in genetics research have been made in recent years. Such advances
have facilitated the availability of huge amounts of genetic information that could potentially …

Genes and social justice: A Rawlsian reply to Moore

C Farrelly - Bioethics, 2002 - Wiley Online Library
In this article I critically examine Adam Moore's claim that the threshold for overriding
intangible property rights and privacy rights is higher, in relation to genetic enhancement …

[图书][B] Genetic discrimination and genetic privacy in a comparative perspective

JH Gerards, AW Heringa, HL Janssen - 2005 - books.google.com
During the last decades, a better understanding of the influence of genetic factors on the
onset of illness and disease has evolved. Unfortunately, however, the information revealed …

[引用][C] Genetic data and the law

M Taylor - London: Cambridge Bioethics and Law, 2012

[HTML][HTML] Is genetic information family property? Expanding on the argument of confidentiality breach and duty to inform persons at risk

Y Enríquez-Canto, B Osimani - Persona y Bioética, 2015 - scielo.org.co
ABSTRACT A current trend in bioethics considers genetic information as family property.
This paper uses a logical approach to critically examine Matthew Liao's proposal on the …

Property rights in genetic information

RA Spinello - Ethics and information technology, 2004 - Springer
The primary theme of this paper is the normative case against ownership of one's genetic
information along with the source of that information (usually human tissues samples). The …

Genetic testing, genetic screening and privacy

J Sandor - The ethics of genetic screening, 1999 - Springer
For moral philosophers and lawyers one of the most embarrassing characteristics of
genetics is that it touches intergenerational problems. It follows from the intergenerational …

Fighting a losing battle?: The right not to know and the dynamics of biomedical knowledge production

P Wehling - Routledge international handbook of ignorance …, 2015 - taylorfrancis.com
This chapter summarizes how the right not to know emerged during the 1980s and 1990s. It
illustrates how this right has been politically and legally recognized and how it corresponds …