Rethinking privacy in the genetic age

D Weisbrot - The Handbook of Genetics & Society, 2009 - taylorfrancis.com
An individual right to privacy emerged at international law in the 1950s, with Article 8 of the
European Convention on Human Rights1 enunciating a broad, general protection for a …

REASSESSING INSURERS'ACCESS TO GENETIC INFORMATION: GENETIC PRIVACY, IGNORANCE, AND INJUSTICE

E Feiring - Bioethics, 2009 - Wiley Online Library
Many countries have imposed strict regulations on the genetic information to which insurers
have access. Commentators have warned against the emerging body of legislation for …

Genetic Data and the Data Protection Regulation: Anonymity, multiple subjects, sensitivity and a prohibitionary logic regarding genetic data?

D Hallinan, M Friedewald, P De Hert - Computer Law & Security Review, 2013 - Elsevier
Owing to the unique qualities of genetic data, there have been numerous criticisms of the
current data protection framework's ability to protect genetic data. It has been suggested that …

Privacy and confidentiality in the age of genetic engineering

G Poste - Tex. Rev. L. & Pol., 1999 - HeinOnline
As Judge Bork stated, this is a remarkable time in the life sciences in terms of the speed of
advances in genetic technologies and in terms of their analytical power. 1 They are matched …

Genetics and privacy

DH Ginsburg - Tex. Rev. L. & Pol., 1999 - HeinOnline
We have witnessed in this decade a veritable explosion in both our understanding of
genetics and our exposure to genetic information.! From Dolly the cloned sheep 2 to DNA …

Disentangling privacy from property: toward a deeper understanding of genetic privacy

SM Suter - Geo. Wash. L. Rev., 2003 - HeinOnline
With the mapping of the human genome, genetic privacy has become a concern to many.
People care about genetic privacy because genes play an important role in shaping us-our …

Allowing agency: An ethical model for communicating personal genetic information

C Rehmann-Sutter - … Dilemmas: Ethics of Genetic Prognosis after …, 2009 - books.google.com
The increasing availability of personal genetic information (a term that we will have to
define) creates situations containing challenging, sometimes even morally coercive …

Who has the right to know the genetic constitution of a particular person?

WC Zimmerli - … 149‐Human Genetic Information: Science, Law …, 2007 - Wiley Online Library
Having conquered computer science, linguistics and aesthetics, the 'informational
paradigm'has finally reached bioscience. In terms of information theory a human being's …

Communicating genetic information in the family: enriching the debate through the notion of integrity

P Boddington, M Gregory - Medicine, Health Care and Philosophy, 2008 - Springer
Genetic information about one individual often has medical and reproductive implications for
that individual's relatives. There is a debate about whether policy on transmitting genetic …

You can't put the genie back in the bottle: On the legal and conceptual understanding of genetic privacy in the era of personal data protection in Europe

S Slokenberga - BioLaw Journal-Rivista di BioDiritto, 2021 - teseo.unitn.it
This article sheds a light on how the data protection requirements enshrined in the General
Data Protection Regulation (GDPR) relate to shaping genetic privacy in the context of a …