In January 2009, the National Heart, Lung, and Blood Institute convened a 28-member
multidisciplinary Working Group to update the recommendations of a 2004 National Heart …

This paper is intended to stimulate debate amongst stakeholders in the international
research community on the topic of returning individual genetic research results to study …

As more research studies incorporate next-generation sequencing (including whole-
genome or whole-exome sequencing), investigators and institutional review boards face …

Efforts are underway to harmonise the return of individual results and incidental findings
from whole genome sequencing (WGS) across research contexts and countries. We …

Purpose: People are interested in receiving their individual research results in exchange for
participating in genetic research. However, it is unclear whether the public understands the …

The return of individual results to research participants has been vigorously debated.
Consensus statements indicate that researchers and bioethicists consider the return of …

Investigators and institutional review boards should integrate plans about the appropriate
disclosure of individual genetic results when designing research studies. The ethical …

Prospective epidemiologic studies aid in identifying genetic variants associated with
diseases, health risks, and physiologic traits. These genetic variants may eventually be …

Published guidelines suggest that research results and incidental findings should be offered
to study participants under some circumstances. Although some have argued against the …

The disclosure of individual genetic research results to study participants continues to be the
subject of vigorous debate, centered primarily on the nature of the results. We suggest that …