Practice Parameter update: The care of the patient with amyotrophic lateral sclerosis: Multidisciplinary care, symptom management, and cognitive/behavioral …

RG Miller, CE Jackson, EJ Kasarskis, JD England… - Neurology, 2009 - AAN Enterprises
Objective: To systematically review evidence bearing on the management of patients with
amyotrophic lateral sclerosis (ALS). Methods: The authors analyzed studies from 1998 to …

Embedded palliative care for amyotrophic lateral sclerosis: a pilot program and lessons learned

K Fahrner-Scott, C Zapata, DL O'Riordan… - Neurology: Clinical …, 2022 - AAN Enterprises
Background and Objectives Palliative care (PC) is recommended for people with
amyotrophic lateral sclerosis (ALS), but there is scant literature about how to best provide …

Amyotrophic lateral sclerosis: ethical issues from diagnosis to end of life

L McCluskey - NeuroRehabilitation, 2007 - content.iospress.com
The variable clinical course of Amyotrophic Lateral Sclerosis (ALS) confronts the clinician,
the patient and caregivers with many ethical challenges from the moment of breaking the …

The role of specialty palliative care for amyotrophic lateral sclerosis

A Sethi, E Everett, A Mehta, J Besbris… - American Journal of …, 2022 - journals.sagepub.com
Amyotrophic Lateral Sclerosis (ALS) is a progressive and incurable neurodegenerative
disease resulting in the loss of motor neurons, eventually leading to death. ALS results in …

ALS multidisciplinary clinic and survival: Results from a population-based study in Southern Italy

S Zoccolella, E Beghi, G Palagano, A Fraddosio… - Journal of …, 2007 - Springer
Background Amyotrophic lateral sclerosis (ALS) is a neurodegenerative disease affecting
motorneurons, for which there is no effective cure. Because of the multifactorial nature of …

[HTML][HTML] Observational study of patients in Spain with amyotrophic lateral sclerosis: correlations between clinical status, quality of life, and dignity

Y Martínez-Campo, C Homedes, A Lazaro, R Alarcón… - BMC palliative …, 2017 - Springer
Background Amyotrophic lateral sclerosis (ALS) is an incurable neurodegenerative disease
that dramatically affects patients' quality of life (QoL) and dignity of life (DoL). We aimed to …

Severity of depressive symptoms and quality of life in patients with amyotrophic lateral sclerosis

A Kübler, S Winter, AC Ludolph… - … and neural repair, 2005 - journals.sagepub.com
Objectives. The authors aimed at investigating the occurrence of depression and the level of
quality of life in patients with amyotrophic lateral sclerosis (ALS), an incurable …

Need and value of case management in multidisciplinary ALS care: a qualitative study on the perspectives of patients, spousal caregivers and professionals

M Bakker, H Creemers, K Schipper… - … lateral sclerosis and …, 2015 - Taylor & Francis
Our objective was to explore the needs and value of case management according to
patients with amyotrophic lateral sclerosis (ALS), their spousal caregivers, and health care …

Practice parameter: the care of the patient with amyotrophic lateral sclerosis (an evidence-based review): report of the Quality Standards Subcommittee of the …

RG Miller, JA Rosenberg, DE Gelinas… - … and Neural Repair, 1999 - journals.sagepub.com
As with other chronic neurologic diseases, many of the problems engendered by the
disease can be managed effectively with a beneficial impact on quality of life and m some …

Management of amyotrophic lateral sclerosis (ALS) by the family nurse practitioner: a timeline for anticipated referrals

M Davis, JS Lou - Journal of the American Association of Nurse …, 2011 - journals.lww.com
Purpose: This article reviews characteristics of amyotrophic lateral sclerosis (ALS) and
appropriate timing of referrals by the nurse practitioner (NP). Data sources: Selected …