The palliative care needs of people severely affected by neurodegenerative disorders: a qualitative study

S Veronese, G Gallo, A Valle, C Cugno… - Progress in Palliative …, 2015 - Taylor & Francis
Specialist palliative care services are often involved in the care of people with progressive
neurological disease, in particular amyotrophic lateral sclerosis. However, the particular …

The management of amyotrophic lateral sclerosis

J Phukan, O Hardiman - Journal of neurology, 2009 - Springer
The terms amyotrophic lateral sclerosis (ALS) or motor neuron disease (MND) refer to a
condition characterized by motor system degeneration with relative preservation of other …

Quality of life in patients with amyotrophic lateral sclerosis: perceptions, coping resources, and illness characteristics

ND Nelson, M Trail, JN Van, SH Appel… - Journal of palliative …, 2003 - liebertpub.com
Objective: To assess and compare quality of life (QOL) for two groups of patients with
amyotrophic lateral sclerosis (ALS):(1) those reporting a more positive quality of life and (2) …

The costs of amyotrophic lateral sclerosis, according to type of care

IVD Steen, JPVD Berg, E Buskens… - Amyotrophic Lateral …, 2009 - Taylor & Francis
Our objective was to estimate the economic burden of patients with amyotrophic lateral
sclerosis (ALS) and to examine the effect of treatment in a multidisciplinary ALS treatment …

Disease-modifying and symptomatic treatment of amyotrophic lateral sclerosis

J Dorst, AC Ludolph, A Huebers - Therapeutic advances in …, 2018 - journals.sagepub.com
In this review, we summarize the most important recent developments in the treatment of
amyotrophic lateral sclerosis (ALS). In terms of disease-modifying treatment options, several …

Palliative care consults in an inpatient setting for patients with amyotrophic lateral sclerosis

AK Mehta, NJ Jackson… - American Journal of …, 2021 - journals.sagepub.com
Background: Limited data about the frequency and outcomes of palliative care (PC)
specialty consultations for patients with amyotrophic lateral sclerosis (ALS) are available …

Causes of death in amyotrophic lateral sclerosis: Results from the Rhineland-Palatinate ALS registry

J Wolf, A Safer, JC Wöhrle, F Palm, WA Nix, M Maschke… - Der Nervenarzt, 2017 - Springer
Background Amyotrophic lateral sclerosis (ALS) is associated with an increased mortality.
Knowledge of possible causes of death could lead to an individualization of the palliative …

Breaking the news in amyotrophic lateral sclerosis

A Chiò, G Domenico Borasio - Amyotrophic Lateral Sclerosis and …, 2004 - Taylor & Francis
Diagnosis communication is a mainstay of the patient-physician relationship and in ALS
represents the beginning of the treatment. In Europe, the diagnosis is now communicated to …

Assessment of feasibility and utility of universal referral to specialty palliative care in a multidisciplinary amyotrophic lateral sclerosis clinic: a cohort study

J Hafer, S Jensen, M Wiedau‐Pazos… - Muscle & …, 2021 - Wiley Online Library
Introduction Although the value of palliative care integration in multidisciplinary amyotrophic
lateral sclerosis (ALS) clinics has been increasingly recognized, limited data are available …

The quality of care and symptom control—the effects on the terminal phase of ALS/MND

D Oliver - Journal of the Neurological Sciences, 1996 - Elsevier
The quality of care in the terminal phase of ALS/MND depends critically on the palliative
care provided throughout the disease process. A retrospective review of 52 patients shows …