At the heart of the right to know and the right not to know debate is the right to choose, which
is predicated on the right to information, and other relevant resources, to enable a choice to …

In this chapter we aim to outline some of the ways in which the debate over the right to know
and the right not to know has moved on since this book was first published in 1997. The …

The privacy concerns discussed in the 1990s in relation to the New Genetics failed to
anticipate the relevant issues for individuals, families, geneticists and society. Consumers …

Against a background of increasing regulation regarding access to medical information and
the presentation of patients' confidentiality, the case of genetic information raises interesting …

Developments in information technology and advances in genetics present challenges to
physicians in terms of providing adequate informed consent. Genetic mechanisms and …

It is often argued that concern with basic personal privacy suggests that individuals should
be allowed to decide in isolation whether to obtain genetic information through testing and …

This paper addresses two competing perspectives choice and responsibility for the
individual undergoing genetic resting and counselling, and the tension between them. A …

The emerging international biomedical law tends to recognise the right not to know one's
genetic status. However, the basis and conditions for the exercise of this right remain …

The contribution ofthis chapter is two-fold. First, it argues for conceptual clarity in the debates
about the right to know and the right not to know by suggesting that the most appropriate …

I welcome the opportunity to respond to the article by Dr Canellopoulou Bottis which
discusses my work'In Defence of Ignorance: Genetic Information and the Right Not to Know' …