Seizure diaries for clinical research and practice: limitations and future prospects

RS Fisher, DE Blum, B DiVentura, J Vannest… - Epilepsy & Behavior, 2012 - Elsevier
PURPOSE: An NINDS-sponsored conference in April of 2011 reviewed issues in epilepsy
clinical trials. One goal was to clarify new electronic methods for recording seizure …

Characteristics of large patient‐reported outcomes: where can one million seizures get us?

V Ferastraoaru, DM Goldenholz, S Chiang… - Epilepsia …, 2018 - Wiley Online Library
Objective To analyze data from Seizure Tracker, a large electronic seizure diary, including
comparison of seizure characteristics among different etiologies, temporal patterns in …

[HTML][HTML] Counting seizures: The primary outcome measure in epileptology from the patients' perspective

B Blachut, C Hoppe, R Surges, J Stahl, CE Elger… - Seizure, 2015 - Elsevier
Purpose Patient-reported seizure counts represent a key outcome measure for individual
treatments and clinical studies in epileptology. Video-EEG based research, however …

Design and implementation of electronic health record common data elements for pediatric epilepsy: Foundations for a learning health care system

ZM Grinspan, AD Patel, RA Shellhaas, AT Berg… - …, 2021 - Wiley Online Library
Abstract Objective Common data elements (CDEs) are standardized questions and answer
choices that allow aggregation, analysis, and comparison of observations from multiple …

Use of an online epilepsy diary to characterize repetitive seizures

RS Fisher, E Bartfeld, JA Cramer - Epilepsy & Behavior, 2015 - Elsevier
Significance Little is known about patterns of seizures that occur multiple times a day,
sometimes called clusters or serial seizures. Objective The online diary, My Epilepsy Diary …

Epilepsy: accuracy of patient seizure counts

C Hoppe, A Poepel, CE Elger - Archives of neurology, 2007 - jamanetwork.com
Objective To evaluate the effects of a daily patient reminder on seizure documentation
accuracy. Design Randomized controlled trial. Setting Monitoring unit of an academic …

[HTML][HTML] Tracking generalized tonic-clonic seizures with a wrist accelerometer linked to an online database

M Velez, RS Fisher, V Bartlett, S Le - Seizure, 2016 - Elsevier
Purpose Clinical management of epilepsy and current epilepsy therapy trials rely on paper
or electronic diaries often with inaccurate self-reported seizure frequency as the primary …

Subjective seizure counts by epilepsy clinical drug trial participants are not reliable

B Blachut, C Hoppe, R Surges, C Elger… - Epilepsy & Behavior, 2017 - Elsevier
Purpose Self-reported seizure counts of patients with epilepsy guide individual treatment
decisions and often represent the primary outcome measure of pharmacological trial in …

Seizure detection at home: Do devices on the market match the needs of people living with epilepsy and their caregivers?

E Bruno, PF Viana, MR Sperling, MP Richardson - Epilepsia, 2020 - Wiley Online Library
In patients with epilepsy, the potential to prevent seizure‐related injuries and to improve the
unreliability of seizure self‐report have fostered the development and marketing of …

Commercially available seizure detection devices: A systematic review

J Shum, D Friedman - Journal of the Neurological Sciences, 2021 - Elsevier
Importance Epilepsy can be associated with significant morbidity and mortality. Seizure
detection devices could be invaluable tools for both people with epilepsy, their caregivers …