Seizure diaries for clinical research and practice: limitations and future prospects
RS Fisher, DE Blum, B DiVentura, J Vannest… - Epilepsy & Behavior, 2012 - Elsevier
PURPOSE: An NINDS-sponsored conference in April of 2011 reviewed issues in epilepsy
clinical trials. One goal was to clarify new electronic methods for recording seizure …
clinical trials. One goal was to clarify new electronic methods for recording seizure …
Characteristics of large patient‐reported outcomes: where can one million seizures get us?
V Ferastraoaru, DM Goldenholz, S Chiang… - Epilepsia …, 2018 - Wiley Online Library
Objective To analyze data from Seizure Tracker, a large electronic seizure diary, including
comparison of seizure characteristics among different etiologies, temporal patterns in …
comparison of seizure characteristics among different etiologies, temporal patterns in …
[HTML][HTML] Counting seizures: The primary outcome measure in epileptology from the patients' perspective
Purpose Patient-reported seizure counts represent a key outcome measure for individual
treatments and clinical studies in epileptology. Video-EEG based research, however …
treatments and clinical studies in epileptology. Video-EEG based research, however …
Design and implementation of electronic health record common data elements for pediatric epilepsy: Foundations for a learning health care system
Abstract Objective Common data elements (CDEs) are standardized questions and answer
choices that allow aggregation, analysis, and comparison of observations from multiple …
choices that allow aggregation, analysis, and comparison of observations from multiple …
Use of an online epilepsy diary to characterize repetitive seizures
RS Fisher, E Bartfeld, JA Cramer - Epilepsy & Behavior, 2015 - Elsevier
Significance Little is known about patterns of seizures that occur multiple times a day,
sometimes called clusters or serial seizures. Objective The online diary, My Epilepsy Diary …
sometimes called clusters or serial seizures. Objective The online diary, My Epilepsy Diary …
Epilepsy: accuracy of patient seizure counts
C Hoppe, A Poepel, CE Elger - Archives of neurology, 2007 - jamanetwork.com
Objective To evaluate the effects of a daily patient reminder on seizure documentation
accuracy. Design Randomized controlled trial. Setting Monitoring unit of an academic …
accuracy. Design Randomized controlled trial. Setting Monitoring unit of an academic …
[HTML][HTML] Tracking generalized tonic-clonic seizures with a wrist accelerometer linked to an online database
M Velez, RS Fisher, V Bartlett, S Le - Seizure, 2016 - Elsevier
Purpose Clinical management of epilepsy and current epilepsy therapy trials rely on paper
or electronic diaries often with inaccurate self-reported seizure frequency as the primary …
or electronic diaries often with inaccurate self-reported seizure frequency as the primary …
Subjective seizure counts by epilepsy clinical drug trial participants are not reliable
Purpose Self-reported seizure counts of patients with epilepsy guide individual treatment
decisions and often represent the primary outcome measure of pharmacological trial in …
decisions and often represent the primary outcome measure of pharmacological trial in …
Seizure detection at home: Do devices on the market match the needs of people living with epilepsy and their caregivers?
In patients with epilepsy, the potential to prevent seizure‐related injuries and to improve the
unreliability of seizure self‐report have fostered the development and marketing of …
unreliability of seizure self‐report have fostered the development and marketing of …
Commercially available seizure detection devices: A systematic review
J Shum, D Friedman - Journal of the Neurological Sciences, 2021 - Elsevier
Importance Epilepsy can be associated with significant morbidity and mortality. Seizure
detection devices could be invaluable tools for both people with epilepsy, their caregivers …
detection devices could be invaluable tools for both people with epilepsy, their caregivers …