Health‐related quality of life of patients with juvenile dermatomyositis: results from the Paediatric Rheumatology International Trials Organisation Multinational Quality …

MT Apaz, C Saad‐Magalhães, A Pistorio… - Arthritis Care & …, 2009 - Wiley Online Library
Objective To investigate the health‐related quality of life (HRQOL) change over time, as
measured by the Child Health Questionnaire (CHQ), and its determinants in patients with …

Quality of life in adults with juvenile‐onset dermatomyositis: a case–control study

A Tollisen, H Sanner, B Flatø… - Arthritis Care & …, 2012 - Wiley Online Library
Objective To compare quality of life in adults diagnosed with juvenile dermatomyositis (DM)
with that of matched controls, and to analyze the association with other disease parameters …

The provisional Paediatric Rheumatology International Trials Organisation/American College of Rheumatology/European League Against Rheumatism Disease …

N Ruperto, A Ravelli, A Pistorio… - Arthritis Care & …, 2008 - Wiley Online Library
Objective To validate a core set of outcome measures for the evaluation of response to
treatment in patients with juvenile dermatomyositis (DM). Methods In 2001, a preliminary …

Measuring disability in juvenile dermatomyositis: validity of the childhood health assessment questionnaire.

BM Feldman, A Ayling-Campos, L Luy… - The Journal of …, 1995 - europepmc.org
Objective Physical disability is perhaps the most important outcome of juvenile
dermatomyositis (JDM). No functional assessment tool has been validated for inflammatory …

Exercise training in juvenile dermatomyositis

CH Omori, CAA Silva, AME Sallum… - Arthritis care & …, 2012 - Wiley Online Library
Objective To investigate the effects of a supervised exercise training program on health
parameters, physical capacity, and health‐related quality of life in patients with mild and …

Disease activity and prognostic factors in juvenile dermatomyositis: a long-term follow-up study applying the Paediatric Rheumatology International Trials Organization …

H Sanner, I Sjaastad, B Flatø - Rheumatology, 2014 - academic.oup.com
Objectives. The aims of this study were to examine disease activity by the Paediatric
Rheumatology International Trials Organization (PRINTO) criteria for inactive disease and …

[HTML][HTML] Juvenile Dermatomyositis: what comes next? Long-term outcomes in childhood myositis from a patient perspective

C Boros, L McCann, S Simou, D Cancemi… - Pediatric …, 2022 - Springer
Background To describe long-term outcomes in JDM using patient questionnaires and link
to longitudinal, prospectively collected data for each patient within the Juvenile …

Long-term outcomes in juvenile dermatomyositis: how did we get here and where are we going?

A Huber, BM Feldman - Current rheumatology reports, 2005 - Springer
Juvenile dermatomyositis (JDM) affects two to four children per million. Prior to treatment
with corticosteroids, JDM had a high mortality rate (> 30%) and left 50% of those who …

The Paediatric Rheumatology International Trials Organisation provisional criteria for the evaluation of response to therapy in juvenile dermatomyositis

N Ruperto, A Pistorio, A Ravelli, LG Rider… - Arthritis Care & …, 2010 - Wiley Online Library
Objective To develop a provisional definition for the evaluation of response to therapy in
juvenile dermatomyositis (DM) based on the Paediatric Rheumatology International Trials …

Cumulative organ damage and prognostic factors in juvenile dermatomyositis: a cross-sectional study median 16.8 years after symptom onset

H Sanner, JT Gran, I Sjaastad, B Flatø - Rheumatology, 2009 - academic.oup.com
Objective. To describe cumulative organ damage in juvenile dermatomyositis (JDM) patients
and to identify patient characteristics and early disease variables that predict organ damage …