What influences patients' decisions regarding palliative care in advance care planning discussions? Perspectives from a qualitative study conducted with advanced …

CP Lin, CJ Evans, J Koffman, SJ Sheu… - Palliative …, 2019 - journals.sagepub.com
Background: The concept of advance care planning is largely derived from Western
countries. However, the decision-making process and drivers for choosing palliative care in …

Patients' perceptions of palliative care: adaptation of the Quality from the Patient's Perspective instrument for use in palliative care, and description of patients' …

T Sandsdalen, I Rystedt, VA Grøndahl, R Hov… - BMC palliative …, 2015 - Springer
Background Instruments specific to palliative care tend to measure care quality from relative
perspectives or have insufficient theoretical foundation. The instrument Quality from the …

Striving for balance: palliative care patients' experiences of making everyday choices

JL Bottorff, R Steele, B Davies… - … of Palliative Care, 1998 - journals.sagepub.com
A fundamental principle of palliative care is the provision of patient-centred care, an
approach explicitly based on the patient's perspective. Although much attention has been …

Predictors of patient-related benefit, burden and feeling safe in relation to hospital admissions in palliative care: a cross-sectional survey

J Robinson, M Gott, R Frey, C Gardiner… - Palliative …, 2018 - journals.sagepub.com
Background: Research exploring patient experience of palliative care in the hospital setting
has previously been limited to negative aspects of care. However, recent studies have …

Reframing the goals of care conversation:“we're in a different place”

AL Back, SB Trinidad, EK Hopley… - Journal of palliative …, 2014 - liebertpub.com
Purpose: Existing recommendations for communicating with patients with metastatic cancer
about redefining goals of care when anticancer treatment is unlikely to provide benefit are …

[HTML][HTML] Care consistency with documented care preferences: methodologic considerations for implementing the “measuring what matters” quality indicator

KT Unroe, SE Hickman, AM Torke… - Journal of pain and …, 2016 - Elsevier
A basic tenet of palliative care is discerning patient treatment preferences and then honoring
these preferences, reflected by the inclusion of “Care Consistency With Documented Care …

How do hospital-based nurses and physicians identify the palliative phase in their patients and what difficulties exist? A qualitative interview study

I Flierman, IC Nugteren, R van Seben, BM Buurman… - BMC palliative …, 2019 - Springer
Background Early start of palliative care improves the quality of life of eligible patients and
their relatives. However, in hospital, patients who could benefit from palliative care are often …

Patients' perceptions of palliative care quality in hospice inpatient care, hospice day care, palliative units in nursing homes, and home care: a cross-sectional study

T Sandsdalen, VA Grøndahl, R Hov, S Høye… - BMC palliative …, 2016 - Springer
Background Patients' perceptions of care quality within and across settings are important for
the further development of palliative care. The aim was to investigate patients' perceptions of …

Satisfaction with palliative care: what should we be aware of?

WKH Fakhoury - International Journal of Nursing Studies, 1998 - Elsevier
This review addresses some of the methodological, theoretical and technical issues related
to using satisfaction as an outcome measure of the quality of palliative care. The …

Issues and needs in end-of-life decision making: an international modified Delphi study

NJH Raijmakers, L Van Zuylen… - Palliative …, 2012 - journals.sagepub.com
Background: end-of-life decision making is an important aspect of end-of-life care that can
have a significant impact on the process of dying and patients' comfort in the last days of life …