Patient autonomy and relatives' right to know genetic information

R Gilbar - Med. & L., 2007 - HeinOnline
One of the most difficult issues doctors face is a conflict between their professional duties.
Such a conflict may arise when doctors know that information has implications not only for …

Communicating genetic information in the family: the familial relationship as the forgotten factor

R Gilbar - Journal of Medical Ethics, 2007 - jme.bmj.com
Communicating genetic information to family members has been the subject of an extensive
debate recently in bioethics and law. In this context, the extent of the relatives' right to know …

Challenging medical-legal norms: the role of autonomy, confidentiality, and privacy in protecting individual and familial group rights in genetic information

GT Laurie - Journal of Legal Medicine, 2001 - Taylor & Francis
Much ink has been spilled discussing the ramifi cations of genetic advances for individuals,
communities, and society at large. A central concern has been the problem of regulating …

[图书][B] The status of the family in law and bioethics: the genetic context

R Gilbar - 2017 - taylorfrancis.com
Where do a doctor's responsibilities lie in communicating diagnostic and predictive genetic
information to a patient's family members? On the one hand, a patient may wish to retain …

Intra-familial obligations to communicate genetic risk information: what foundations? What forms?

G Nycum, BM Knoppers, D Avard - McGill JL & Health, 2009 - HeinOnline
Developments in genetics have been accompanied by, or have perhaps even instigated, a
shift in medical ethics. Stalwart ethical principles of the second half of the twentieth century …

The right not to know: an autonomy based approach

R Andorno - Journal of medical ethics, 2004 - jme.bmj.com
The emerging international biomedical law tends to recognise the right not to know one's
genetic status. However, the basis and conditions for the exercise of this right remain …

Patients' Rights or Family Responsibilities-Two Approaches to Genetic Testing

L Skene - Med. L. Rev., 1998 - HeinOnline
This paper explores two contrasting approaches to policy making on genetic testing and the
control and use of human tissue and genetic information, especially in the intra-familial …

Physician-patient confidentiality and familial access to genetic information

J Miller - Health LJ, 1994 - HeinOnline
It has been predicted that the focus of legal liability as it relates to genetic screening will shift
from quality-control issues to issues involving genetic information.'If this prediction holds …

Comment on a view favoring ignorance of genetic information: Confidentiality, autonomy, beneficence and the right not to know

MC Bottis - European Journal of Health Law, 2000 - JSTOR
In June 1999, the European Journal of Health Law published an article, by Graeme Laurie,
on the right of the relatives of a patient not to know genetic information not only concerning …

Genetic privacy: orthodoxy or oxymoron?

A Sommerville, V English - Journal of Medical Ethics, 1999 - jme.bmj.com
In this paper we question whether the concept of" genetic privacy" is a contradiction in terms.
And, if so, whether the implications of such a conclusion, inevitably impact on how society …