Evaluating the congenital heart assessment tool: a quality improvement project

L Smith, J Wray, KL Gaskin - Cardiology in the Young, 2023 - cambridge.org
Background: An early warning tool, the Congenital Heart Assessment Tool (CHAT), was
designed in 2012 to support parental preparation before discharge, enhancing …

An improved congenital heart assessment tool: a quality improvement outcome

KL Gaskin, L Smith, J Wray - Cardiology in the Young, 2023 - cambridge.org
Background: CHD was the most prevalent congenital anomaly (60.9 per 10,000, 95% CI
59.0–62.8) in England in 2018, with 1767 babies born with severe cardiac defects. The 30 …

Acceptability of a parental early warning tool for parents of infants with complex congenital heart disease: a qualitative feasibility study

KL Gaskin, J Wray, DJ Barron - Archives of Disease in Childhood, 2018 - adc.bmj.com
Aim To explore the acceptability and feasibility of a parental early warning tool, called the
Congenital Heart Assessment Tool (CHAT), for parents going home with their infant between …

Identifying improvements to complex pathways: evidence synthesis and stakeholder engagement in infant congenital heart disease

S Crowe, R Knowles, J Wray, J Tregay, DA Ridout… - BMJ open, 2016 - bmjopen.bmj.com
Objectives Many infants die in the year following discharge from hospital after surgical or
catheter intervention for congenital heart disease (3–5% of discharged infants). There is …

[HTML][HTML] Surveillance of adults with congenital heart disease: Current guidelines and actual clinical practice

JW Roos-Hesselink, C Pelosi, M Brida… - International journal of …, 2024 - Elsevier
Background and aim Congenital heart disease (CHD) is the most common birth defect with
prevalence of 0.8%. Thanks to tremendous progress in medical and surgical practice …

Heart OBServation app: development of a decision support tool for parents of infants with severe cardiac disease

E Hjorth-Johansen, E Børøsund, A Moen… - Cardiology in the …, 2023 - cambridge.org
Background and objectives: Many parents of infants with CHD find it difficult to recognise
symptoms of deterioration in their children. Therefore, a personalised decision support …

British Congenital Cardiac Association Fetal Cardiology Standards: impact of Patient and Public involvement exercise on the development of clinical standards

M Bluebond-Langner, S Wakeling, K Vincent… - Cardiology in the …, 2023 - cambridge.org
Objective: To examine the impact of a Patient and Public Involvement exercise on the
development of British Congenital Cardiac Association Fetal Cardiology Standards 2021 …

[HTML][HTML] Personalized care for every single patient with congenital heart disease: the time is now

H Habibi, EL Heng, H Nashat, SV Babu-Narayan… - International Journal of …, 2021 - Elsevier
Fifty-one consecutive adult congenital heart disease (ACHD) patients attended a single site,
day-case facility-in the midst of the Covid pandemic-for cardiac assessment tailored to their …

Development and preliminary testing of the brief developmental assessment: an early recognition tool for children with heart disease

J Wray, KL Brown, D Ridout, M Lakhanpaul… - Cardiology in the …, 2018 - cambridge.org
IntroductionNeurodevelopmental abnormalities are common in children with CHD and are
the highest-priority concerns for parents and professionals following cardiac surgery in …

[HTML][HTML] Patient experience within the adult congenital heart disease outreach network: a questionnaire-based study

G Ooues, P Clift, S Bowater, S Arif, A Epstein… - Journal of Congenital …, 2018 - Springer
Background Specialist multi-disciplinary care improves outcomes of Adult Congenital Heart
Disease (ACHD) patients. Following the NHS England Congenital Heart Disease standards …