Biobanks and archived data sets collecting samples and data have become crucial engines
of genetic and genomic research. Unresolved, however, is what responsibilities biobanks …

During the past decade, various guidelines that imply a duty for researchers to disclose
information obtained through research to participants have emerged. The character and …

Abstract The Public Population Project in Genomics and Society (P 3 G) is a not-for profit
international consortium with members from more than 40 countries. Its objective is to lead …

Published guidelines suggest that research results and incidental findings should be offered
to study participants under some circumstances. Although some have argued against the …

Purpose: Return of individual genetic results to research participants, including participants
in archives and biorepositories, is receiving increased attention. However, few groups have …

Background Biobanks have the potential to offer a venue for chronic disease biomarker
discovery, which would allow for disease early detection and for identification of carriers of a …

As genomic and exomic testing expands in both the research and clinical arenas,
determining whether, how, and which incidental findings to return to the ordering clinician …

The debate over return of individual research results and incidental findings to study
participants is a key frontier in research ethics and practice. This is fundamentally a problem …

Purpose: Comprehensive genomic analysis including exome and genome sequencing is
increasingly being utilized in research studies, leading to the generation of incidental …

Biobanks have been developed as a tool to better understand the genetic basis of disease
by linking DNA samples to corresponding medical information. The broad scope of such …