Working together: Experiences of people with aphasia as co-researchers in participatory health research studies
R McMenamin, M Griffin, B Grzybowska, C Pound - Aphasiology, 2021 - Taylor & Francis
Background: People with aphasia have been engaging with research in a variety of ways.
There are few descriptions of how they are involved in participatory research methodologies …
There are few descriptions of how they are involved in participatory research methodologies …
Development of an “aphasia-accessible participant in research experience survey” through co-production
C Shiggins, D Coe, L Gilbert… - Aphasiology, 2022 - Taylor & Francis
Introduction Feedback is essential for the development and enhancement of processes.
Everyone who participates in research should have the opportunity to provide feedback on …
Everyone who participates in research should have the opportunity to provide feedback on …
In it for the long haul: a reflective account of collaborative involvement in aphasia research and education
S Horton, D Barnston, J Barnston, C Bell, J Bell… - Aphasiology, 2021 - Taylor & Francis
Background: The involvement of service users and supporters/advocates in healthcare
education and healthcare research has developed an increasingly high profile in recent …
education and healthcare research has developed an increasingly high profile in recent …
Using a participatory learning and action (PLA) research approach to involve people with aphasia as co-researchers in service evaluation: An analysis of co …
R McMenamin, E Tierney, A MacFarlane - Aphasiology, 2018 - Taylor & Francis
Background: Qualitative research methodologies are increasingly used to capture and
promote our understanding of health and illness experiences. However, two specific …
promote our understanding of health and illness experiences. However, two specific …
Who decides what criteria are important to consider in exploring the outcomes of conversation approaches? A participatory health research study
R Mc Menamin, E Tierney, A Mac Farlane - Aphasiology, 2015 - Taylor & Francis
Background: One of the most devastating consequences of aphasia is the disruption to
normal conversation. The Conversation Partner Programme emphasises communicative …
normal conversation. The Conversation Partner Programme emphasises communicative …
Building Research Initiatives by Developing Group Effort (BRIDGE): Patient-Partners in Aphasia Research
A Brice, J Hinckley - Seminars in Speech and Language, 2022 - thieme-connect.com
Researcher-initiated research often has little or no input from the groups who will be affected
by the results of the research. The aim of this project was to describe practices of embracing …
by the results of the research. The aim of this project was to describe practices of embracing …
The development of the People with Aphasia and Other Layperson Involvement (PAOLI) framework for guiding patient and public involvement (PPI) in aphasia …
M Charalambous, A Kountouri, JR Schwyter… - Research Involvement …, 2023 - Springer
Abstract Background Patient and Public Involvement (PPI) in aphasia research requires
researchers to include people with aphasia as research partners from the beginning of the …
researchers to include people with aphasia as research partners from the beginning of the …
The views of people living with chronic stroke and aphasia on their potential involvement as research partners: a thematic analysis
M Charalambous, A Kountouri, P Phylactou… - Research Involvement …, 2022 - Springer
Abstract Background Patient and Public Involvement (PPI) is the active partnership between
researchers, patients and laypeople in the process of creating research. PPI in stroke …
researchers, patients and laypeople in the process of creating research. PPI in stroke …
Addressing the long-term impacts of aphasia: how far does the Conversation Partner Programme go?
R Mc Menamin, E Tierney, A Mac Farlane - Aphasiology, 2015 - Taylor & Francis
Background: Approximately 176,000 new individuals in the United Kingdom and Ireland are
diagnosed with stroke annually with up to one third experiencing aphasia. Qualitative …
diagnosed with stroke annually with up to one third experiencing aphasia. Qualitative …
Stakeholder-engaged research: What our friendship in aphasia team learned about processes and pitfalls
KA Strong, NF Douglas, R Johnson… - Topics in Language …, 2023 - journals.lww.com
There is a need for intervention to support friendship for people living with aphasia. The
purpose of this article is to describe a stakeholder engagement process that involved …
purpose of this article is to describe a stakeholder engagement process that involved …