AB1543-HPR WAITING ROOM PROJECT: IMPROVING HEALTHCARE OF SYSTEMIC LUPUS ERYTHEMATOSUS PATIENTS

F Moura, S Brito, DA Mota, L Diniz, J Monção, V Nunes… - 2022 - ard.bmj.com
Background Systemic lupus erythematosus (SLE) prognosis is determined by a wide range
of factors, such as the severity of the disease manifestations, the psychosocial aspects of …

POS0171 PATIENT-DOCTOR COMMUNICATION GAP-RESULTS OF A SPEED-SHOP ON “LUPUS FLARE” AT LUPUS2022 MEETINGS

A Cornet, F Marchiori, H Stefánsdóttir, M Mosca - 2023 - ard.bmj.com
Background The Patient–Doctor communication gap is often discussed, and is one of the
obstacles pointed by patients and doctors alike in the fruitful co-working of optimal …

POS1111 A CHARTER TO IMPROVE CARE FOR LUPUS

M Mosca, J Andersen, P Wildman, S Manzi, Z Amoura… - 2024 - ard.bmj.com
Background: Systemic lupus erythematosus (SLE) is a complex and heterogenous
autoimmune disease characterised by periods of worsening symptoms, known as flares …

AB0603 WORKING TOWARDS A CORE MINIMAL DATASET FOR SYSTEMIC LUPUS ERYTHEMATOSUS STUDIES

S Mcdonald, J Teng, M Barraclough, IN Bruce - 2023 - ard.bmj.com
Background Systemic Lupus Erythematosus (SLE) is a complex autoimmune disease and its
heterogeneity means that many cohorts and clinical trials do not collect the same data …

POS0753 SUBSPECIALTY LUPUS CLINIC CARE IS ASSOCIATED WITH HIGHER QUALITY FOR PATIENTS WITH SYSTEMIC LUPUS ERYTHEMATOSUS

S Sreedharan, A Hoi, N Li, G Littlejohn, R Buchanan… - 2021 - ard.bmj.com
Background: Healthcare quality for systemic lupus erythematosus (SLE) is a modifiable
target for improving patient outcomes. Disease-specific subspecialty clinics offer …

AB1553-HPR BASELINE CHARACTERISTICS OF PATIENTS WITH SLE ACROSS 5 REGISTRIES–THE LUPUSNET FEDERATED DATA NETWORK

U Sbarigia, F Zazzetti, M Lewi, M Van Speybroeck… - 2024 - ard.bmj.com
Background: Systemic lupus erythematosus (SLE) is an autoimmune disease with a broad
range of clinical manifestations and a high unmet need across patient populations. Real …

AB0920-PARE WHAT WE LEARNED DURING COVID-19 PANDEMIC

J Grygielska - 2021 - ard.bmj.com
Background: When the first official cases of pneumonia of unknown etiology in the city of
Wuhan were reported by Chinese authorities to the World Health Organization (WHO) on …

OP0281-PARE LUPUS EUROPE'S PATIENT ADVISORY NETWORK–A HUGE DOUBLE SUCCESS

A Cornet, Z Karakikla-Mitsakou, A Sluijmers, A Somers… - 2023 - ard.bmj.com
Background Financial and Human Resources are 2 key issues faced by European
federations of Patient organisations and limiting their impact. This reality is also a vicious …

POS1181 NOT YET ON TRACK: RETROSPECTIVE CHART ANALYSIS REVEALS PHYSICIAN'S TREATMENT APPOACHES IN SLE FALL SHORT OF NEW EULAR …

S May, V Strand, R Rex, M Yarnall - 2024 - ard.bmj.com
Background: In October 2023, EULAR released updated recommendations for the
management of systemic lupus erythematosus (SLE). 2 Notably, since the previous …

AB0510 Improving knowledge of sle disease flares and treatment options among rheumatologists and primary care providers: effect of an online educational …

E Jackson, D Blatherwick, K Badal - 2018 - ard.bmj.com
Background With a significantly higher mortality in patients affected by systemic lupus
erythematosus (SLE) developing chronic damage, prevention is a major goal in …