The article examines the opportunities for change in new media narratives. In this case new
media become tools calling for “patient liberation”. A case-based qualitative study was …

Background The vascular hypothesis of multiple sclerosis (MS), called chronic cerebrospinal
venous insufficiency (CCSVI), and its treatment (known as liberation therapy) was …

This thesis describes a Canadian patient movement—largely comprising multiple sclerosis
patients—that has developed around Chronic Cerebrospinal Venous Insufficiency (CCSVI) …

This study examines how a medically contested procedure for people living with multiple
sclerosis was framed by the news media and challenged by user-generated Facebook …

Introduction: Listening to patients' voices is increasingly being recognized as an important
factor for continuous improvement in health care. Integrating patients' stories about their …

Background: We conducted a rigorous review of videos related to multiple sclerosis (MS)
and chronic cerebrospinal venous insufficiency (CCSVI) treatment posted by people with MS …

The research is focused on a patient-based social media movement which advocated for
clinical research into a discovery rejected by key elements of the medical establishment …

Objective Venoplasty has been proposed, alongside the theory of chronic cerebrospinal
venous insufficiency (CCSVI), as a treatment for multiple sclerosis (MS). Despite concerns …

The purpose of this study was to examine an insider's perspective on communication in
multiple sclerosis (MS), a disease of the central nervous system in which scattered lesions or …

Stories about illness have proven invaluable in helping health professionals understand
illness experiences. Such narratives have traditionally been solicited by researchers through …