From biocolonialism to emancipation: considerations on ethical and culturally respectful omics research with indigenous Australians
As part of a (bio) colonial project, the biological information of Indigenous Peoples has
historically been under scientific scrutiny, with very limited benefits for communities and …
historically been under scientific scrutiny, with very limited benefits for communities and …
Genomics in research and health care with Aboriginal and Torres Strait Islander peoples
Genomics is increasingly becoming an integral component of health research and clinical
care. The perceived difficulties associated with genetic research involving Aboriginal and …
care. The perceived difficulties associated with genetic research involving Aboriginal and …
DNA on loan: issues to consider when carrying out genetic research with aboriginal families and communities
L Arbour, D Cook - Public Health Genomics, 2006 - karger.com
In the current research milieu where genetic etiology is considered a critical component in
the discovery of pathogenesis, aboriginal families and communities affected with genetic …
the discovery of pathogenesis, aboriginal families and communities affected with genetic …
Indigenous peoples and genomics: starting a conversation
J Morgan, RR Coe, R Lesueur, R Kenny… - Journal of Genetic …, 2019 - Wiley Online Library
Compared to European ancestral groups, Indigenous Canadians are more likely to have
uninterpretable genome‐wide sequencing results due to non‐representation in reference …
uninterpretable genome‐wide sequencing results due to non‐representation in reference …
Precision medicine in Australia: indigenous health professionals are needed to improve equity for Aboriginal and Torres Strait Islanders
Precision medicine, also known as “personalised medicine”, seeks to identify strategies in
the prevention and treatment of disease informed by a patient's genomic information. This …
the prevention and treatment of disease informed by a patient's genomic information. This …
Genetic Research within Indigenous Communities: Engagement Opportunities and Pathways Forward
Purpose Against a historical backdrop of researchers who violated trust through lack of
benefit sharing, transparency, and engagement, efforts are underway to develop better …
benefit sharing, transparency, and engagement, efforts are underway to develop better …
A framework for enhancing ethical genomic research with Indigenous communities
Integration of genomic technology into healthcare settings establishes new capabilities to
predict disease susceptibility and optimize treatment regimes. Yet, Indigenous peoples …
predict disease susceptibility and optimize treatment regimes. Yet, Indigenous peoples …
Indigenous peoples and the morality of the Human Genome Diversity Project.
M Dodson, R Williamson - Journal of Medical Ethics, 1999 - jme.bmj.com
In addition to the aim of mapping and sequencing one human's genome, the Human
Genome Project also intends to characterise the genetic diversity of the world's peoples. The …
Genome Project also intends to characterise the genetic diversity of the world's peoples. The …
Ethics in Indigenous research–connecting with community
T Dunbar, M Scrimgeour - Journal of Bioethical Inquiry, 2006 - Springer
The challenge for those responsible for funding, brokering and assessing the merit of
proposed Indigenous research is to identify and then work co-operatively with appropriate …
proposed Indigenous research is to identify and then work co-operatively with appropriate …
Attitudes and experiences regarding genetic research among persons of African descent
DM Scott, VG Thomas, J Otado, F Rockcliffe… - Journal of community …, 2020 - Springer
Minorities are underrepresented in genetic research. This study examined the attitudes,
experiences, and willingness of persons of African descent related to participation in genetic …
experiences, and willingness of persons of African descent related to participation in genetic …