From biocolonialism to emancipation: considerations on ethical and culturally respectful omics research with indigenous Australians

GH Soares, J Hedges, S Sethi, B Poirier… - Medicine, Health Care …, 2023 - Springer
As part of a (bio) colonial project, the biological information of Indigenous Peoples has
historically been under scientific scrutiny, with very limited benefits for communities and …

Genomics in research and health care with Aboriginal and Torres Strait Islander peoples

R McWhirter, D Nicol, J Savulescu - Monash Bioethics Review, 2015 - Springer
Genomics is increasingly becoming an integral component of health research and clinical
care. The perceived difficulties associated with genetic research involving Aboriginal and …

DNA on loan: issues to consider when carrying out genetic research with aboriginal families and communities

L Arbour, D Cook - Public Health Genomics, 2006 - karger.com
In the current research milieu where genetic etiology is considered a critical component in
the discovery of pathogenesis, aboriginal families and communities affected with genetic …

Indigenous peoples and genomics: starting a conversation

J Morgan, RR Coe, R Lesueur, R Kenny… - Journal of Genetic …, 2019 - Wiley Online Library
Compared to European ancestral groups, Indigenous Canadians are more likely to have
uninterpretable genome‐wide sequencing results due to non‐representation in reference …

Precision medicine in Australia: indigenous health professionals are needed to improve equity for Aboriginal and Torres Strait Islanders

DA Lewis, T Mitchell, E Kowal - International Journal for Equity in Health, 2024 - Springer
Precision medicine, also known as “personalised medicine”, seeks to identify strategies in
the prevention and treatment of disease informed by a patient's genomic information. This …

Genetic Research within Indigenous Communities: Engagement Opportunities and Pathways Forward

KS Barton, KM Porter, T Mai, KG Claw, VY Hiratsuka… - Genetics in …, 2024 - Elsevier
Purpose Against a historical backdrop of researchers who violated trust through lack of
benefit sharing, transparency, and engagement, efforts are underway to develop better …

A framework for enhancing ethical genomic research with Indigenous communities

KG Claw, MZ Anderson, RL Begay, KS Tsosie… - Nature …, 2018 - nature.com
Integration of genomic technology into healthcare settings establishes new capabilities to
predict disease susceptibility and optimize treatment regimes. Yet, Indigenous peoples …

Indigenous peoples and the morality of the Human Genome Diversity Project.

M Dodson, R Williamson - Journal of Medical Ethics, 1999 - jme.bmj.com
In addition to the aim of mapping and sequencing one human's genome, the Human
Genome Project also intends to characterise the genetic diversity of the world's peoples. The …

Ethics in Indigenous research–connecting with community

T Dunbar, M Scrimgeour - Journal of Bioethical Inquiry, 2006 - Springer
The challenge for those responsible for funding, brokering and assessing the merit of
proposed Indigenous research is to identify and then work co-operatively with appropriate …

Attitudes and experiences regarding genetic research among persons of African descent

DM Scott, VG Thomas, J Otado, F Rockcliffe… - Journal of community …, 2020 - Springer
Minorities are underrepresented in genetic research. This study examined the attitudes,
experiences, and willingness of persons of African descent related to participation in genetic …