The ethics and challenges of studying the genetics of marginalized populations
Marginalized Populations,” offers a pointed examination of the ethical considerations
embedded within the study of genetics in historically underrepresented groups. Although …
embedded within the study of genetics in historically underrepresented groups. Although …
Genetic Diversity Project Tries Again: Geneticists' plans to collect DNA from the world's indigenous peoples were met with opposition, even cries of" racism." Now the …
P Kahn - Science, 1994 - science.org
When a few geneticists first proposed a global effort to survey genetic diversity among the
world's peoples 3 years ago, they had high hopes. The project, they said, would yield rich …
world's peoples 3 years ago, they had high hopes. The project, they said, would yield rich …
Orphan DNA: Indigenous samples, ethical biovalue and postcolonial science
E Kowal - Social Studies of Science, 2013 - journals.sagepub.com
Thousands of blood samples taken from Australia's indigenous people lie in institutional
freezers of the global North, the legacy of a half-century of scientific research. Since those …
freezers of the global North, the legacy of a half-century of scientific research. Since those …
Indigenous genomics
Indigenous genomics Page 1 In 1994 Indigenous people around the world raised the alarm
about scientists who wanted to steal their biolog- ical material, patent it and make drugs from it …
about scientists who wanted to steal their biolog- ical material, patent it and make drugs from it …
[HTML][HTML] Ethical challenges in genetic research among Philippine Indigenous Peoples: Insights from fieldwork in Zamboanga and the Sulu Archipelago
JJRB Rodriguez, JMD Cuales, MJB Herrera… - Frontiers in …, 2022 - frontiersin.org
The Philippines, with the recent discovery of an archaic hominin in Luzon and an extensive
ethnolinguistic diversity of more than 100 Indigenous peoples, is crucial to understanding …
ethnolinguistic diversity of more than 100 Indigenous peoples, is crucial to understanding …
[HTML][HTML] Genomic research through an indigenous lens: understanding the expectations
NA Garrison, M Hudson, LL Ballantyne… - Annual review of …, 2019 - annualreviews.org
Indigenous scholars are leading initiatives to improve access to genetic and genomic
research and health care based on their unique cultural contexts and within sovereign …
research and health care based on their unique cultural contexts and within sovereign …
Protecting communities in research: current guidelines and limits of extrapolation
C Weijer, G Goldsand, EJ Emanuel - Nature genetics, 1999 - nature.com
As genetic research increasingly focuses on communities, there have been calls for
extending research protections to them. We critically examine guidelines developed to …
extending research protections to them. We critically examine guidelines developed to …
Engaging rural communities in genetic research: challenges and opportunities
Statistical analyses of health and disease in rural communities is frequently limited by low
sample counts. Still, some studies indicate increased risk for some diseases even after …
sample counts. Still, some studies indicate increased risk for some diseases even after …
Ethical considerations in genomic research in South Africa
J De Vries, NS Munung - South African Medical Journal, 2019 - journals.co.za
The conduct of genomic research in South Africa (SA) raises a number of ethical challenges
that need to be addressed in its design and execution. These include, for example …
that need to be addressed in its design and execution. These include, for example …
Values and practices to strengthen genetic research partnerships with indigenous communities
W Burke, JA Beans, MK Cho, G Nanibaa'A… - … in Community Health …, 2022 - muse.jhu.edu
Genetic datasets lack diversity and include very few data from Indigenous populations.
Research models based on equitable partnership have the potential to increase Indigenous …
Research models based on equitable partnership have the potential to increase Indigenous …