Community engagement in genetics and genomics research: a qualitative study of the perspectives of genetics and genomics researchers in Uganda

H Nankya, E Wamala, VP Alibu, J Barugahare - BMC Medical Ethics, 2024 - Springer
Background Generally, there is unanimity about the value of community engagement in
health-related research. There is also a growing tendency to view genetics and genomics …

Beyond platitudes: a qualitative study of Australian Aboriginal people's perspectives on biobanking

A Hermes, M Wiersma, I Kerridge… - Internal medicine …, 2021 - Wiley Online Library
Background Biobanks are vital resources for genetics and genomics, and it is broadly
recognised that for maximal benefit it is essential that they include samples and data from …

[HTML][HTML] The illusion of inclusion—the “All of Us” research program and indigenous peoples' DNA

K Fox - New England Journal of Medicine, 2020 - Mass Medical Soc
The Illusion of Inclusion — The “All of Us” Research Program and Indigenous Peoples’ DNA |
New England Journal of Medicine Skip to main content The New England Journal of Medicine …

Perspectives of researchers, science policy makers and research ethics committee members on the feedback of individual genetic research findings in African …

F Musvipwa, A Wonkam, B Berkman, J de Vries - BMC Medical Ethics, 2024 - Springer
Background Genetic research can yield information that is unrelated to the study's objectives
but may be of clinical or personal interest to study participants. There is an emerging but …

A Critical Appraisal of Protections for Aborginal Communities in Biomedical Research

C Weijer, JA Anderson - Jurimetrics, 2001 - HeinOnline
As scientists target communities for research into the etiology, especially the genetic
determinants of common diseases, there have been calls for the protection of communities …

[引用][C] Bioethics in research: The ethics of indigeneity

M Durie - 9th Global Forum on Bioethics in Research, Auckland …, 2008

What does Australia's investment in genomics mean for public health?

A Belcher, M Mangelsdorf, F McDonald… - Australian and New …, 2019 - Wiley Online Library
The question of who benefits from publicly funded genomics is also important. One of the
basic principles of public health is equity–health for all, not just those who are relatively well …

The individual and the community in international genetic research

PA Marshall - The Journal of Clinical Ethics, 2004 - journals.uchicago.edu
In the broad arena of international scientific research, the use of placebos in clinical trials,
the meaning of “best proven therapeutic method” in culturally diverse settings, and questions …

An integrative review of the barriers to indigenous peoples participation in biobanking and genomic research

J Aramoana, J Koea… - JCO global oncology, 2020 - ascopubs.org
PURPOSE This investigation was undertaken to define the barriers to Indigenous peoples
participating in biobanking and genomic research. METHODS A literature review was …

Ethical, legal and social issues of genetic studies with African immigrants as research subjects

G Gong, S Kosoko-Lasaki, G Haynatzki, C Cook… - Journal of the National …, 2008 - Elsevier
There is growing interest in exploring gene–environment interactions in the etiology of
diseases in immigrants from sub-Saharan Africa. Our experience working with the Sudanese …