Background Generally, there is unanimity about the value of community engagement in
health-related research. There is also a growing tendency to view genetics and genomics …

Background Biobanks are vital resources for genetics and genomics, and it is broadly
recognised that for maximal benefit it is essential that they include samples and data from …

The Illusion of Inclusion — The “All of Us” Research Program and Indigenous Peoples’ DNA |
New England Journal of Medicine Skip to main content The New England Journal of Medicine …

Background Genetic research can yield information that is unrelated to the study's objectives
but may be of clinical or personal interest to study participants. There is an emerging but …

As scientists target communities for research into the etiology, especially the genetic
determinants of common diseases, there have been calls for the protection of communities …

The question of who benefits from publicly funded genomics is also important. One of the
basic principles of public health is equity–health for all, not just those who are relatively well …

In the broad arena of international scientific research, the use of placebos in clinical trials,
the meaning of “best proven therapeutic method” in culturally diverse settings, and questions …

PURPOSE This investigation was undertaken to define the barriers to Indigenous peoples
participating in biobanking and genomic research. METHODS A literature review was …

There is growing interest in exploring gene–environment interactions in the etiology of
diseases in immigrants from sub-Saharan Africa. Our experience working with the Sudanese …