A pathway to precision medicine for Aboriginal Australians: a study protocol
(1) Background: Genomic precision medicine (PM) utilises people's genomic data to inform
the delivery of preventive and therapeutic health care. PM has not been well-established for …
the delivery of preventive and therapeutic health care. PM has not been well-established for …
Human Genome Diversity: ethics and practice in Australia
PS van Holst - Human Evolution, 2004 - Springer
Researchers who propose projects about the human past frequently fail to distinguish
between scientific value and the impact of both the proposal and the possible outcome for …
between scientific value and the impact of both the proposal and the possible outcome for …
Frontiers of bio-decolonization: Indigenous data sovereignty as a possible model for community-based participatory genomic health research for racialized peoples in …
AA Valiani - Genealogy, 2022 - mdpi.com
This paper explores the manners in which Indigenous and allied non-Indigenous
researchers, medical directors, and knowledge-keepers (among others) extend the ethical …
researchers, medical directors, and knowledge-keepers (among others) extend the ethical …
Indigenous research: a commitment to walking the talk. The Gudaga Study—an Australian case study
JA Knight, EJ Comino, E Harris… - Journal of Bioethical …, 2009 - Springer
Increasingly, the role of health research in improving the discrepancies in health outcomes
between Indigenous and non-Indigenous populations in developed countries is being …
between Indigenous and non-Indigenous populations in developed countries is being …
Indigenous health research ethics in Australia: Applying guidelines as the basis for negotiating research agreements
T Dunbar, M Scrimgeour - Monash Bioethics Review, 2006 - Springer
The introduction of the National Health and Medical Research Council guidelines for the
ethical conduct of Indigenous health research: Values and Ethics: guidelines for ethical …
ethical conduct of Indigenous health research: Values and Ethics: guidelines for ethical …
Exploring the barriers preventing Indigenous Australians from accessing cancer genetic counseling
T Gonzalez, R Harris, R Williams… - Journal of Genetic …, 2020 - Wiley Online Library
Abstract In Australia, individuals of Aboriginal and Torres Strait Islander descent (Indigenous
Australians) have poorer health outcomes than the general population, including higher …
Australians) have poorer health outcomes than the general population, including higher …
Community‐Oriented Research and the Future of Anthropological Genetics
RS Malhi - A Companion to Anthropological Genetics, 2019 - Wiley Online Library
Indigenous community members have historically experienced turbulent relationships with
scientists regarding genetics research, largely due to the exploitative methods used by …
scientists regarding genetics research, largely due to the exploitative methods used by …
Guideline for feedback of individual genetic research findings for genomics research in Africa
A Matimba, S Ali, K Littler, E Madden, P Marshall… - BMJ Global …, 2022 - gh.bmj.com
As human genomics research in Africa continues to generate large amounts of data, ethical
issues arise regarding how actionable genetic information is shared with research …
issues arise regarding how actionable genetic information is shared with research …
Indigenous genomic databases: pragmatic considerations and cultural contexts
The potential to grow genomic knowledge and harness the subsequent clinical benefits has
escalated the building of background variant databases (BVDs) for genetic diagnosis across …
escalated the building of background variant databases (BVDs) for genetic diagnosis across …
The Bibbulung Gnarneep Project: practical implementation of guidelines on ethics in Indigenous health research
SJ Eades, AW Read - Medical Journal of Australia, 1999 - Wiley Online Library
Human rights and ethical principles justify Indigenous control of health research conducted
in Indigenous communities, but also emphasise the need for scientific rigour, knowledge …
in Indigenous communities, but also emphasise the need for scientific rigour, knowledge …