A pathway to precision medicine for Aboriginal Australians: a study protocol

YY Cheng, J Nunn, J Skinner, B Rambaldini… - Methods and …, 2021 - mdpi.com
(1) Background: Genomic precision medicine (PM) utilises people's genomic data to inform
the delivery of preventive and therapeutic health care. PM has not been well-established for …

Human Genome Diversity: ethics and practice in Australia

PS van Holst - Human Evolution, 2004 - Springer
Researchers who propose projects about the human past frequently fail to distinguish
between scientific value and the impact of both the proposal and the possible outcome for …

Frontiers of bio-decolonization: Indigenous data sovereignty as a possible model for community-based participatory genomic health research for racialized peoples in …

AA Valiani - Genealogy, 2022 - mdpi.com
This paper explores the manners in which Indigenous and allied non-Indigenous
researchers, medical directors, and knowledge-keepers (among others) extend the ethical …

Indigenous research: a commitment to walking the talk. The Gudaga Study—an Australian case study

JA Knight, EJ Comino, E Harris… - Journal of Bioethical …, 2009 - Springer
Increasingly, the role of health research in improving the discrepancies in health outcomes
between Indigenous and non-Indigenous populations in developed countries is being …

Indigenous health research ethics in Australia: Applying guidelines as the basis for negotiating research agreements

T Dunbar, M Scrimgeour - Monash Bioethics Review, 2006 - Springer
The introduction of the National Health and Medical Research Council guidelines for the
ethical conduct of Indigenous health research: Values and Ethics: guidelines for ethical …

Exploring the barriers preventing Indigenous Australians from accessing cancer genetic counseling

T Gonzalez, R Harris, R Williams… - Journal of Genetic …, 2020 - Wiley Online Library
Abstract In Australia, individuals of Aboriginal and Torres Strait Islander descent (Indigenous
Australians) have poorer health outcomes than the general population, including higher …

Community‐Oriented Research and the Future of Anthropological Genetics

RS Malhi - A Companion to Anthropological Genetics, 2019 - Wiley Online Library
Indigenous community members have historically experienced turbulent relationships with
scientists regarding genetics research, largely due to the exploitative methods used by …

Guideline for feedback of individual genetic research findings for genomics research in Africa

A Matimba, S Ali, K Littler, E Madden, P Marshall… - BMJ Global …, 2022 - gh.bmj.com
As human genomics research in Africa continues to generate large amounts of data, ethical
issues arise regarding how actionable genetic information is shared with research …

Indigenous genomic databases: pragmatic considerations and cultural contexts

NR Caron, M Chongo, M Hudson, L Arbour… - Frontiers in Public …, 2020 - frontiersin.org
The potential to grow genomic knowledge and harness the subsequent clinical benefits has
escalated the building of background variant databases (BVDs) for genetic diagnosis across …

The Bibbulung Gnarneep Project: practical implementation of guidelines on ethics in Indigenous health research

SJ Eades, AW Read - Medical Journal of Australia, 1999 - Wiley Online Library
Human rights and ethical principles justify Indigenous control of health research conducted
in Indigenous communities, but also emphasise the need for scientific rigour, knowledge …