The Bibbulung Gnarneep Project: practical implementation of guidelines on ethics in Indigenous health research
SJ Eades, AW Read - Medical Journal of Australia, 1999 - Wiley Online Library
Human rights and ethical principles justify Indigenous control of health research conducted
in Indigenous communities, but also emphasise the need for scientific rigour, knowledge …
in Indigenous communities, but also emphasise the need for scientific rigour, knowledge …
Community engagement and the protection-inclusion dilemma
R McWhirter, A Hermes, S Huebner… - The American Journal of …, 2023 - Taylor & Francis
In articulating the protection-inclusion dilemma, Friesen et al.(2023) identify an important
issue facing institutional review boards (IRBs) and elucidate historical factors contributing to …
issue facing institutional review boards (IRBs) and elucidate historical factors contributing to …
[HTML][HTML] A review of international and UK-based ethical guidelines for researchers conducting nontherapeutic genetic studies in developing countries
S Roy Choudhury, LA Knapp - European journal of human genetics, 2006 - nature.com
Initiation and implementation of nontherapeutic genetic research projects, sponsored by
developed countries and conducted in developing countries, requires careful consideration …
developed countries and conducted in developing countries, requires careful consideration …
Genetics research in American Indian communities: sociocultural considerations and participatory research
D Warne - Jurimetrics, 2005 - JSTOR
Genetics research has the potential to improve health care. American Indians (AIS) suffer
from significant health disparities, including significantly higher incidence and prevalence of …
from significant health disparities, including significantly higher incidence and prevalence of …
[HTML][HTML] Toward an open access genomics database of South Africans: ethical considerations
Genomics research holds the potential to improve healthcare. Yet, a very low percentage of
the genomic data used in genomics research internationally relates to persons of African …
the genomic data used in genomics research internationally relates to persons of African …
Interrelationships among native peoples, genetic research, and the landscape: need for further research into ethical, legal, and social issues
ML Tano - Journal of Law, Medicine & Ethics, 2006 - cambridge.org
During the past four years, the International Institute for Indigenous Resource Management
has sponsored and co-sponsored a series of discursive roundtables on the ethical, legal …
has sponsored and co-sponsored a series of discursive roundtables on the ethical, legal …
Genetic research and the collective good: participants as leaders to reconcile individual and public interests
This paper problematises the notions of public or common good as weighed against
individual sovereignty in the context of medical research by focusing on genetic research …
individual sovereignty in the context of medical research by focusing on genetic research …
[引用][C] (C) ELSI‐us: Reducing friction with indigenous communities in genomic research
M Hudson, P Wilcox, B Smith, A Beaton… - American …, 2018 - Wiley Online Library
Unlike other issues of AA in which the World Anthro-pologies section has one or two clear
themes or is fully housed in the print journal, the theme of this one is less obvious. The bulk …
themes or is fully housed in the print journal, the theme of this one is less obvious. The bulk …
The need for genetic studies of Indigenous Australians
GS Baynam - Medical Journal of Australia, 2012 - mja.com.au
TO THE EDITOR: The continuing integration of genetic technologies into clinical medicine is
providing opportunities for health care improvement. This has the potential to reduce health …
providing opportunities for health care improvement. This has the potential to reduce health …
Whose genes are they? The human genome diversity project
LL Dog - Journal of Health & Social Policy, 1999 - Taylor & Francis
Summary The Human Genome Diversity Project (HGDP) has targeted several hundred
indigenous peoples worldwide as their source of genetic material. Proponents for this …
indigenous peoples worldwide as their source of genetic material. Proponents for this …