The Bibbulung Gnarneep Project: practical implementation of guidelines on ethics in Indigenous health research

SJ Eades, AW Read - Medical Journal of Australia, 1999 - Wiley Online Library
Human rights and ethical principles justify Indigenous control of health research conducted
in Indigenous communities, but also emphasise the need for scientific rigour, knowledge …

Community engagement and the protection-inclusion dilemma

R McWhirter, A Hermes, S Huebner… - The American Journal of …, 2023 - Taylor & Francis
In articulating the protection-inclusion dilemma, Friesen et al.(2023) identify an important
issue facing institutional review boards (IRBs) and elucidate historical factors contributing to …

[HTML][HTML] A review of international and UK-based ethical guidelines for researchers conducting nontherapeutic genetic studies in developing countries

S Roy Choudhury, LA Knapp - European journal of human genetics, 2006 - nature.com
Initiation and implementation of nontherapeutic genetic research projects, sponsored by
developed countries and conducted in developing countries, requires careful consideration …

Genetics research in American Indian communities: sociocultural considerations and participatory research

D Warne - Jurimetrics, 2005 - JSTOR
Genetics research has the potential to improve health care. American Indians (AIS) suffer
from significant health disparities, including significantly higher incidence and prevalence of …

[HTML][HTML] Toward an open access genomics database of South Africans: ethical considerations

A Gooden, D Thaldar - Frontiers in Genetics, 2023 - frontiersin.org
Genomics research holds the potential to improve healthcare. Yet, a very low percentage of
the genomic data used in genomics research internationally relates to persons of African …

Interrelationships among native peoples, genetic research, and the landscape: need for further research into ethical, legal, and social issues

ML Tano - Journal of Law, Medicine & Ethics, 2006 - cambridge.org
During the past four years, the International Institute for Indigenous Resource Management
has sponsored and co-sponsored a series of discursive roundtables on the ethical, legal …

Genetic research and the collective good: participants as leaders to reconcile individual and public interests

I Galasso, S Geiger - Journal of Medical Ethics, 2023 - jme.bmj.com
This paper problematises the notions of public or common good as weighed against
individual sovereignty in the context of medical research by focusing on genetic research …

[引用][C] (C) ELSI‐us: Reducing friction with indigenous communities in genomic research

M Hudson, P Wilcox, B Smith, A Beaton… - American …, 2018 - Wiley Online Library
Unlike other issues of AA in which the World Anthro-pologies section has one or two clear
themes or is fully housed in the print journal, the theme of this one is less obvious. The bulk …

The need for genetic studies of Indigenous Australians

GS Baynam - Medical Journal of Australia, 2012 - mja.com.au
TO THE EDITOR: The continuing integration of genetic technologies into clinical medicine is
providing opportunities for health care improvement. This has the potential to reduce health …

Whose genes are they? The human genome diversity project

LL Dog - Journal of Health & Social Policy, 1999 - Taylor & Francis
Summary The Human Genome Diversity Project (HGDP) has targeted several hundred
indigenous peoples worldwide as their source of genetic material. Proponents for this …