Ubuntu philosophy and the consensus regarding incidental findings in genomic research: a heuristic approach
C Ewuoso - Medicine, Health Care and Philosophy, 2020 - Springer
This study adopts a heuristic technique to argue the thesis that a set of norms rooted in the
African philosophy of Ubuntu can usefully supplement current research guidelines for …
African philosophy of Ubuntu can usefully supplement current research guidelines for …
ASSAf consensus study on the ethical, legal and social implications of genetics and genomics in South Africa
South Africa is home to one of the most genetically diverse populations in the world, which,
combined with its high disease burden and high-quality infrastructure, makes our country a …
combined with its high disease burden and high-quality infrastructure, makes our country a …
A perpetual source of DNA or something really different: ethical issues in the creation of cell lines for African genomics research
J De Vries, A Abayomi, J Brandful, K Littler… - BMC medical …, 2014 - Springer
Background The rise of genomic studies in Africa–not least due to projects funded under
H3Africa–is associated with the development of a small number of biorepositories across …
H3Africa–is associated with the development of a small number of biorepositories across …
Ethics of medical research in Aboriginal and Torres Strait Islander populations
S Bobba - Australian Journal of Primary Health, 2019 - CSIRO Publishing
Conducting ethical health research in Aboriginal and Torres Strait Islander populations
requires an understanding of their unique cultural values and the historical context. The …
requires an understanding of their unique cultural values and the historical context. The …
Ask the people: developing guidelines for genomic research with Aboriginal and Torres Strait Islander peoples
S Kaladharan, ME Vidgen, JV Pearson… - BMJ Global …, 2021 - gh.bmj.com
In health and medical research, guidelines are a set of statements and recommendations,
whereby experts or stakeholders assess published literature to generate practical advice for …
whereby experts or stakeholders assess published literature to generate practical advice for …
Research ethics, reconciliation, and strengthening the research relationship in Indigenous health domains: An Australian perspective
MJ Johnstone - International Journal of Intercultural Relations, 2007 - Elsevier
Australia has one of the best health care systems in the world. Despite this, the health of
Indigenous Australians remains poor in comparison to non-Indigenous Australians and in …
Indigenous Australians remains poor in comparison to non-Indigenous Australians and in …
Genetic research with Indigenous Peoples: perspectives on governance and oversight in the US
NA Garrison, SR Carroll - Frontiers in Research Metrics and Analytics, 2023 - frontiersin.org
Introduction Indigenous Peoples are increasingly exerting governance and oversight over
genomic research with citizens of their nations, raising questions about how best to enforce …
genomic research with citizens of their nations, raising questions about how best to enforce …
Community leaders' perspectives on engaging African Americans in biobanks and other human genetics initiatives
AG Buseh, PE Stevens, S Millon-Underwood… - Journal of community …, 2013 - Springer
There is limited information about what African Americans think about biobanks and the
ethical questions surrounding them. Likewise, there is a gap in capacity to successfully …
ethical questions surrounding them. Likewise, there is a gap in capacity to successfully …
Islands as laboratories: indigenous knowledge and gene drives in the Pacific
RI Taitingfong - Human Biology, 2019 - muse.jhu.edu
This article argues that the genetic engineering technology known as gene drive must be
evaluated in the context of the historic and ongoing impacts of settler colonialism and …
evaluated in the context of the historic and ongoing impacts of settler colonialism and …
Rights, interests and expectations: Indigenous perspectives on unrestricted access to genomic data
Addressing Indigenous rights and interests in genetic resources has become increasingly
challenging in an open science environment that promotes unrestricted access to genomic …
challenging in an open science environment that promotes unrestricted access to genomic …