Ubuntu philosophy and the consensus regarding incidental findings in genomic research: a heuristic approach

C Ewuoso - Medicine, Health Care and Philosophy, 2020 - Springer
This study adopts a heuristic technique to argue the thesis that a set of norms rooted in the
African philosophy of Ubuntu can usefully supplement current research guidelines for …

ASSAf consensus study on the ethical, legal and social implications of genetics and genomics in South Africa

MS Pepper, C Dandara, J De Vries, A Dhai… - South African Journal …, 2018 - scielo.org.za
South Africa is home to one of the most genetically diverse populations in the world, which,
combined with its high disease burden and high-quality infrastructure, makes our country a …

A perpetual source of DNA or something really different: ethical issues in the creation of cell lines for African genomics research

J De Vries, A Abayomi, J Brandful, K Littler… - BMC medical …, 2014 - Springer
Background The rise of genomic studies in Africa–not least due to projects funded under
H3Africa–is associated with the development of a small number of biorepositories across …

Ethics of medical research in Aboriginal and Torres Strait Islander populations

S Bobba - Australian Journal of Primary Health, 2019 - CSIRO Publishing
Conducting ethical health research in Aboriginal and Torres Strait Islander populations
requires an understanding of their unique cultural values and the historical context. The …

Ask the people: developing guidelines for genomic research with Aboriginal and Torres Strait Islander peoples

S Kaladharan, ME Vidgen, JV Pearson… - BMJ Global …, 2021 - gh.bmj.com
In health and medical research, guidelines are a set of statements and recommendations,
whereby experts or stakeholders assess published literature to generate practical advice for …

Research ethics, reconciliation, and strengthening the research relationship in Indigenous health domains: An Australian perspective

MJ Johnstone - International Journal of Intercultural Relations, 2007 - Elsevier
Australia has one of the best health care systems in the world. Despite this, the health of
Indigenous Australians remains poor in comparison to non-Indigenous Australians and in …

Genetic research with Indigenous Peoples: perspectives on governance and oversight in the US

NA Garrison, SR Carroll - Frontiers in Research Metrics and Analytics, 2023 - frontiersin.org
Introduction Indigenous Peoples are increasingly exerting governance and oversight over
genomic research with citizens of their nations, raising questions about how best to enforce …

Community leaders' perspectives on engaging African Americans in biobanks and other human genetics initiatives

AG Buseh, PE Stevens, S Millon-Underwood… - Journal of community …, 2013 - Springer
There is limited information about what African Americans think about biobanks and the
ethical questions surrounding them. Likewise, there is a gap in capacity to successfully …

Islands as laboratories: indigenous knowledge and gene drives in the Pacific

RI Taitingfong - Human Biology, 2019 - muse.jhu.edu
This article argues that the genetic engineering technology known as gene drive must be
evaluated in the context of the historic and ongoing impacts of settler colonialism and …

Rights, interests and expectations: Indigenous perspectives on unrestricted access to genomic data

M Hudson, NA Garrison, R Sterling, NR Caron… - Nature Reviews …, 2020 - nature.com
Addressing Indigenous rights and interests in genetic resources has become increasingly
challenging in an open science environment that promotes unrestricted access to genomic …