Taken together, Tupara's (2012) article on decision making for health research in Aotearoa,
New Zealand, and Sherman and colleagues'(2012) case study from the Peruvian Amazon …

Purpose: He Tangata Kei Tua, a relationship model for biobanks, was developed to facilitate
best practice in addressing Māori ethical concerns by guiding culturally informed policy and …

The varied, abrupt and amazing geography of the land of Peru is home of one of the major
concentrations of indigenous peoples in the world. The asymmetry of power, however, in …

Individuals with African ancestry have the greatest genomic diversity in the world, yet they
have been underrepresented in genomic research. To advance our understanding of human …

Background Community engagement has been recognised as an important aspect of the
ethical conduct of biomedical research, especially when research is focused on ethnically or …

The origin story of Indigenous health research ethics, like many tales of regulation, begins in
a meeting room. In this case it was the Araluen Centre, Alice Springs in 1986, the site of the …

Across the globe, government, university, and corporate researchers are undertaking
genetic research and developing related biotechnologies. Areas of interest include human …

The preparedness of Africa for genomic medicine remains a matter of debate because this
question is always evaluated from a technological standpoint. Yet the resilience of African …

Purpose Amid calls for greater diversity in precision medicine research, the perspectives of
Indigenous people have been underexplored. Our goals were to understand tribal leaders' …

In this paper, we describe the potential role laypersons on ethics committees can play in
ensuring community concerns are addressed in the design and implementation of genomic …