Indigenous populations: decision making and informed consent to research

PA Marshall - AJOB Primary Research, 2012 - Taylor & Francis
Taken together, Tupara's (2012) article on decision making for health research in Aotearoa,
New Zealand, and Sherman and colleagues'(2012) case study from the Peruvian Amazon …

[HTML][HTML] Engaging Māori in biobanking and genomic research: a model for biobanks to guide culturally informed governance, operational, and community …

A Beaton, M Hudson, M Milne, RV Port, K Russell… - Genetics in …, 2017 - nature.com
Purpose: He Tangata Kei Tua, a relationship model for biobanks, was developed to facilitate
best practice in addressing Māori ethical concerns by guiding culturally informed policy and …

Ethical problems in health research with indigenous or originary peoples in Peru

G Minaya, J Roque - Journal of community genetics, 2015 - Springer
The varied, abrupt and amazing geography of the land of Peru is home of one of the major
concentrations of indigenous peoples in the world. The asymmetry of power, however, in …

[HTML][HTML] The emergence of genomic research in Africa and new frameworks for equity in biomedical research

AR Bentley, S Callier, C Rotimi - Ethnicity & disease, 2019 - ncbi.nlm.nih.gov
Individuals with African ancestry have the greatest genomic diversity in the world, yet they
have been underrepresented in genomic research. To advance our understanding of human …

[HTML][HTML] Community engagement strategies for genomic studies in Africa: a review of the literature

P Tindana, J de Vries, M Campbell, K Littler, J Seeley… - BMC medical …, 2015 - Springer
Background Community engagement has been recognised as an important aspect of the
ethical conduct of biomedical research, especially when research is focused on ethnically or …

[引用][C] The vulnerable object of indigenous research ethics

E Kowal - The Australian journal of anthropology, 2014 - Wiley Online Library
The origin story of Indigenous health research ethics, like many tales of regulation, begins in
a meeting room. In this case it was the Araluen Centre, Alice Springs in 1986, the site of the …

[PDF][PDF] The tribal specific approach to genetic research and technology

K TallBear - … & Development Management Conference, University of …, 2001 - iiirm.org
Across the globe, government, university, and corporate researchers are undertaking
genetic research and developing related biotechnologies. Areas of interest include human …

My Bantu vision of genomic medicine in Africa

A Lumaka - Nature Genetics, 2023 - nature.com
The preparedness of Africa for genomic medicine remains a matter of debate because this
question is always evaluated from a technological standpoint. Yet the resilience of African …

[HTML][HTML] Precision medicine research with American Indian and Alaska Native communities: results of a deliberative engagement with tribal leaders

SB Trinidad, E Blacksher, RB Woodbury, SE Hopkins… - Genetics in …, 2022 - Elsevier
Purpose Amid calls for greater diversity in precision medicine research, the perspectives of
Indigenous people have been underexplored. Our goals were to understand tribal leaders' …

Community members' engagement with and involvement in genomic research: Lessons to learn from the field

MO Folayan, KS Oyedeji… - Developing World …, 2015 - Wiley Online Library
In this paper, we describe the potential role laypersons on ethics committees can play in
ensuring community concerns are addressed in the design and implementation of genomic …