[PDF][PDF] Power, rights, respect and data ownership in academic research with indigenous peoples
S Moodie - Environmental Research, 2010 - superfund.oregonstate.edu
In some cases, environmental research raises ethical and legal issues when indigenous
peoples are involved. Two recent events underscore the persistent and appalling disconnect …
peoples are involved. Two recent events underscore the persistent and appalling disconnect …
Perspectives on returning individual and aggregate genomic research results to study participants and communities in Kenya: a qualitative study
Background A fundamental ethical challenge in conducting genomics research is the
question of what and how individual level genetic findings and aggregate genomic results …
question of what and how individual level genetic findings and aggregate genomic results …
Leaves imitate trees: Minnesota Hmong concepts of heredity and applications to genomics research
KA Culhane-Pera, MK Moua, P Vue, K Xiaaj… - Journal of community …, 2017 - Springer
Historically, Hmong refugees in the USA were distrustful of Western medicine, medicines,
and medical research due to concerns about harm and experimentation. Current Hmong …
and medical research due to concerns about harm and experimentation. Current Hmong …
Fostering ethical, legal, and social implications research in tribal communities: The Center for the Ethics of Indigenous Genomic Research
VY Hiratsuka, JA Beans, J Reedy… - Journal of Empirical …, 2020 - journals.sagepub.com
Genomic research raises unique ethical concerns among Alaska Native and American
Indian (AN/AI) people and their communities. The Center for the Ethics of Indigenous …
Indian (AN/AI) people and their communities. The Center for the Ethics of Indigenous …
[HTML][HTML] Investigating the potential for ethnic group harm in collaborative genomics research in Africa: is ethnic stigmatisation likely?
J de Vries, M Jallow, TN Williams, D Kwiatkowski… - Social science & …, 2012 - Elsevier
A common assumption in genomics research is that the use of ethnic categories has the
potential to lead to ethnic stigmatisation–particularly when the research is done on minority …
potential to lead to ethnic stigmatisation–particularly when the research is done on minority …
[PDF][PDF] Beyond consent: respect for community in genetic research
DJ Jones, PL Bush, AC Macaulay - eLS, 2001 - mcgill.ca
Paralleling the broadening of scientific thought occasioned by the human genome project,
calls have been sounded to expand research ethics to include a principle of 'respect for …
calls have been sounded to expand research ethics to include a principle of 'respect for …
An ethical framework for research using genetic ancestry
ACF Lewis, SJ Molina, PS Appelbaum… - … in biology and …, 2023 - muse.jhu.edu
A wide range of research uses patterns of genetic variation to infer genetic similarity
between individuals, typically referred to as genetic ancestry. This research includes …
between individuals, typically referred to as genetic ancestry. This research includes …
Deliberations about genomic research and biobanks with citizens of the Chickasaw Nation
Amid the rapid growth of precision medicine and biobanking initiatives, there have been few
efforts at cataloging the implications of these initiatives for Indigenous communities. A …
efforts at cataloging the implications of these initiatives for Indigenous communities. A …
Ethical research for Indigenous people by Indigenous researchers
M Toombs - Aboriginal and Islander Health Worker Journal, 2012 - search.informit.org
Research processes as well as research outcomes are increasingly a focus of consideration
for those engaging in a broad range of Indigenous research in Australia.'Research reform …
for those engaging in a broad range of Indigenous research in Australia.'Research reform …
Ethics guidelines use and Indigenous governance and participation in Aboriginal and Torres Strait Islander health research: a national survey
LJ Burchill, A Kotevski, DLM Duke… - Medical Journal of …, 2023 - Wiley Online Library
Objectives To assess the use of NHMRC Indigenous research guidelines by Australian
researchers and the degree of Aboriginal and Torres Strait Islander governance and …
researchers and the degree of Aboriginal and Torres Strait Islander governance and …