[PDF][PDF] Power, rights, respect and data ownership in academic research with indigenous peoples

S Moodie - Environmental Research, 2010 - superfund.oregonstate.edu
In some cases, environmental research raises ethical and legal issues when indigenous
peoples are involved. Two recent events underscore the persistent and appalling disconnect …

Perspectives on returning individual and aggregate genomic research results to study participants and communities in Kenya: a qualitative study

I Kisiangani, SF Mohamed, C Kyobutungi, P Tindana… - BMC Medical …, 2022 - Springer
Background A fundamental ethical challenge in conducting genomics research is the
question of what and how individual level genetic findings and aggregate genomic results …

Leaves imitate trees: Minnesota Hmong concepts of heredity and applications to genomics research

KA Culhane-Pera, MK Moua, P Vue, K Xiaaj… - Journal of community …, 2017 - Springer
Historically, Hmong refugees in the USA were distrustful of Western medicine, medicines,
and medical research due to concerns about harm and experimentation. Current Hmong …

Fostering ethical, legal, and social implications research in tribal communities: The Center for the Ethics of Indigenous Genomic Research

VY Hiratsuka, JA Beans, J Reedy… - Journal of Empirical …, 2020 - journals.sagepub.com
Genomic research raises unique ethical concerns among Alaska Native and American
Indian (AN/AI) people and their communities. The Center for the Ethics of Indigenous …

[HTML][HTML] Investigating the potential for ethnic group harm in collaborative genomics research in Africa: is ethnic stigmatisation likely?

J de Vries, M Jallow, TN Williams, D Kwiatkowski… - Social science & …, 2012 - Elsevier
A common assumption in genomics research is that the use of ethnic categories has the
potential to lead to ethnic stigmatisation–particularly when the research is done on minority …

[PDF][PDF] Beyond consent: respect for community in genetic research

DJ Jones, PL Bush, AC Macaulay - eLS, 2001 - mcgill.ca
Paralleling the broadening of scientific thought occasioned by the human genome project,
calls have been sounded to expand research ethics to include a principle of 'respect for …

An ethical framework for research using genetic ancestry

ACF Lewis, SJ Molina, PS Appelbaum… - … in biology and …, 2023 - muse.jhu.edu
A wide range of research uses patterns of genetic variation to infer genetic similarity
between individuals, typically referred to as genetic ancestry. This research includes …

Deliberations about genomic research and biobanks with citizens of the Chickasaw Nation

J Reedy, JW Blanchard, J Lund, PG Spicer… - Frontiers in …, 2020 - frontiersin.org
Amid the rapid growth of precision medicine and biobanking initiatives, there have been few
efforts at cataloging the implications of these initiatives for Indigenous communities. A …

Ethical research for Indigenous people by Indigenous researchers

M Toombs - Aboriginal and Islander Health Worker Journal, 2012 - search.informit.org
Research processes as well as research outcomes are increasingly a focus of consideration
for those engaging in a broad range of Indigenous research in Australia.'Research reform …

Ethics guidelines use and Indigenous governance and participation in Aboriginal and Torres Strait Islander health research: a national survey

LJ Burchill, A Kotevski, DLM Duke… - Medical Journal of …, 2023 - Wiley Online Library
Objectives To assess the use of NHMRC Indigenous research guidelines by Australian
researchers and the degree of Aboriginal and Torres Strait Islander governance and …