Understanding patient preferences and willingness to pay for hemophilia therapies

SS Chaugule, JW Hay, G Young - Patient preference and …, 2015 - Taylor & Francis
Background Despite clearly improved clinical outcomes for prophylaxis compared to on-
demand therapy, on average only 56% of patients diagnosed with severe hemophilia …

[HTML][HTML] Patient preferences in the treatment of hemophilia A: A best–worst scaling case 3 analysis

AC Mühlbacher, A Sadler, B Lamprecht, C Juhnke - Value in Health, 2020 - Elsevier
Objective To assess patient preferences for benefits and risks in hemophilia A treatment.
Methods A systematic literature search and pretest interviews were conducted to determine …

The perspective of patients with haemophilia with inhibitors and their care givers: preferences for treatment characteristics

TM Brown, CL Pashos, AV Joshi, WC Lee - Haemophilia, 2011 - Wiley Online Library
Treatment preferences of haemophilia patients with inhibitors have not been well
documented. This study sought to identify treatment attributes that patients/caregivers …

Preferences and health-related quality-of-life related to disease and treatment features for patients with hemophilia A in a canadian general population sample

K Johnston, JM Stoffman, AT Mickle… - Patient preference …, 2021 - Taylor & Francis
Background Current treatments for hemophilia A in Canada include on-demand treatment
as bleeds occur and regular intravenous prophylactic factor VIII (FVIII) infusions. The …

Patient and parent preferences for characteristics of prophylactic treatment in hemophilia

R Furlan, S Krishnan, J Vietri - Patient preference and adherence, 2015 - Taylor & Francis
Introduction New longer-acting factor products will potentially allow for less frequent infusion
in prophylactic treatment of hemophilia. However, the role of administration frequency …

Preference‐based valuation of treatment attributes in haemophilia A using web survey

K Steen Carlsson, E Andersson, E Berntorp - Haemophilia, 2017 - Wiley Online Library
Introduction Clinical trials have shown promising results for extended half‐life factor VIII
concentrates but little is known about individuals' valuation of haemophilia treatment …

Recognizing the need for personalization of haemophilia patient‐reported outcomes in the prophylaxis era

M Recht, BA Konkle, S Jackson, EJ Neufeld… - …, 2016 - Wiley Online Library
The safety and efficacy of treatment options for patients with haemophilia have significantly
improved over the last two decades, particularly with greater utilization of prophylactic …

Patient and parent preferences for haemophilia A treatments

AF Mohamed, JD Epstein, JM Li‐McLeod - Haemophilia, 2011 - Wiley Online Library
Little is known about the relative importance of factor VIII (FVIII) treatment attributes to
haemophilia A patients and their willingness to accept trade‐offs among these attributes. To …

Health economic models in hemophilia A and utility assumptions from a clinician's perspective

M Valente, PA Cortesi, G Lassandro… - Pediatric Blood & …, 2015 - Wiley Online Library
Background The clinical benefits of prophylaxis in patients with hemophilia are well‐
established and include the following: reduced bleeding episodes, prevention of joint …

[HTML][HTML] The changing costs of caring for hemophilia patients in the US: insurers' and patients' perspectives

A Eldar-Lissai, Q Hou, S Krishnan - Blood, 2014 - Elsevier
Background: Hemophilia is an inherited condition, requiring lifelong, expensive treatment
driven primarily by the cost of medications. Initiating prophylaxis treatment with factors VIII …