Background: To design high-quality home-based hospice and palliative care (HBHPC)
systems, it is imperative to understand the perspectives of parents whose children enroll in …

Abstract Background: In 2017, the Ohio Pediatric Palliative Care and End-of-Life Network
(OPPEN) published nine domains of high-quality care for pediatric home-based hospice and …

Background: Children receiving hospice and palliative care (HPC) differ from adults in
important ways. Children are more likely to have rare diagnoses, less likely to have cancer …

Context Children with life-shortening serious illnesses and medically-complex care needs
are often cared for by their families at home. Little, however, is known about what aspects of …

Background Many children with serious illnesses are receiving palliative and end-of-life care
from pediatric palliative and hospice care teams at home (PPHC@ Home). Despite the …

Medical and academic institutions began prioritizing Pediatric Palliative Care (PPC) less
than two decades ago. Although policies and institutions claim to improve the Quality of Life …

Methods: The methods include a qualitative study using semistructured interviews and a
grounded theory analytic framework enrolled caregivers of children aged 1 month to 26 …

Context Hospital-based pediatric palliative care (PPC) may help optimize referrals to
community-based hospice and home-based palliative care (HBPC) for children with serious …

Objective To describe the demographic and clinical characteristics of a cohort of patients
referred to pediatric hospice and home-based palliative care (HBPC) programs across Ohio …

Pediatric palliative care and pediatric hospice care (PPC-PHC) are often essential aspects
of medical care for patients who have life-threatening conditions or need end-of-life care …