The great interest in biobanks, the related, substantial investments, and the expectations
connected with them raises the question of how to explain the relative successes and …

Biobanks are a challenge and topic for governance. Today, biobanks are identified as a
biomedical scientific/infrastructural development that warrants a political/legal/ethical …

Although a few jurisdictions around the world have legislated in response to the
phenomenon of biobanking, the far more common response has been policy led with …

Good biobank governance implies—at a minimum—transparency and accountability and
the implementation of oversight mechanisms. While the biobanking community is in general …

The inspiration and impetus for this special issue on ''Biobanking''came after over a decade
of real world experience by the editors in the funding, building, and roll-out of biobanks …

Biobank governance is about the regulation of the relationship between individual citizens,
society and biobanks. Its key agenda is to link society, citizens and biobanks with respect to …

Biobanks are increasingly hailed as powerful tools to advance health research. The social
and ethical challenges associated with the implementation and operation of biobanks are …

Rapid technological advances, the establishment of large-scale biobanks, and the
exchange of data across international boundaries raise a variety of questions for regulators …

Biobanks are controversial due to their ethical, legal, and social implications. Recent
discussion has highlighted a central role for governance in helping to address these …

Research infrastructures such as biobanks are increasingly important for science and
society. This paper focuses on the transition of biobanks from being a research tool of …