Factors influencing decision-making in relation to timing of gastrostomy insertion in patients with motor neurone disease

T Stavroulakis, WO Baird, SK Baxter… - BMJ supportive & …, 2014 - spcare.bmj.com
Objectives This study aimed to explore the decision-making process leading up to
gastrostomy insertion from the perspective of the patients and their informal carers …

The impact of gastrostomy in motor neurone disease: challenges and benefits from a patient and carer perspective

T Stavroulakis, WO Baird, SK Baxter… - BMJ Supportive & …, 2016 - spcare.bmj.com
Objectives This study explores the experience of gastrostomy insertion from the perspective
of the patients and their informal carers. Gastrostomy feeding is commonly used to support …

Gastrostomy uptake in motor neurone disease: a mixed-methods study of patients' decision making

J Labra, A Hogden, E Power, N James, VM Flood - BMJ open, 2020 - bmjopen.bmj.com
Objectives Gastrostomy decision making is a complicated, multifaceted process for people
with motor neuron disease (MND). This study explored demographic and disease-related …

Factors influencing decisions people with motor neuron disease make about gastrostomy placement and ventilation: A qualitative evidence synthesis

S White, A O'Cathain, V Halliday, L Croot… - Health …, 2023 - Wiley Online Library
Background People with motor neuron disease (pwMND) are routinely offered gastrostomy
feeding tube placement and (non‐invasive and invasive) ventilation to manage the …

Gastrostomy use in motor neurone disease (MND): a review, meta-analysis and survey of current practice

T Stavroulakis, T Walsh, PJ Shaw… - … Lateral Sclerosis and …, 2013 - Taylor & Francis
Gastrostomy feeding is commonly used to support MND patients with dysphagia. In this
paper we review three main methods of gastrostomy insertion (PEG, RIG, PIG); conduct a …

[HTML][HTML] Gastrostomy in patients with amyotrophic lateral sclerosis (ProGas): a prospective cohort study

ProGas Study Group - The Lancet Neurology, 2015 - Elsevier
Background Gastrostomy feeding is commonly used to support patients with amyotrophic
lateral sclerosis who develop severe dysphagia. Although recommended by both the …

[HTML][HTML] Nutritional support teams increase percutaneous endoscopic gastrostomy uptake in motor neuron disease

L Zhang, L Sanders, RJL Fraser - World Journal of …, 2012 - ncbi.nlm.nih.gov
AIM: To examine factors influencing percutaneous endoscopic gastrostomy (PEG) uptake
and outcomes in motor neuron disease (MND) in a tertiary care centre. METHODS: Case …

[HTML][HTML] Control in the absence of choice: A qualitative study on decision-making about gastrostomy in people with amyotrophic lateral sclerosis, caregivers, and …

RM van Eenennaam, N Rave, WJ Kruithof… - Plos one, 2023 - journals.plos.org
Background Gastrostomy is recommended in amyotrophic lateral sclerosis for long-term
nutritional support, however, people with amyotrophic lateral sclerosis and healthcare …

Frequency, timing and outcome of gastrostomy tubes for amyotrophic lateral sclerosis/motor neurone disease: a record linkage study from the Scottish Motor Neurone …

RB Forbes, S Colville, RJ Swingler… - Journal of …, 2004 - Springer
Aims: To describe the frequency, timing and outcome from gastrostomy in amyotrophic
lateral sclerosis/motor neurone disease (ALS/MND). Methods: The Scottish MND Register, a …

Why parents of children with neurodevelopmental disabilities requiring gastrostomy feeding need more support

GM Craig, G Scambler, L Spitz - Developmental medicine and child …, 2003 - cambridge.org
This was a qualitative research study of parental perceptions of gastrostomy feeding before
surgery using an in-depth interview in the parental home to examine the factors parents …