Physicians perceptions of shared decision-making in neonatal and pediatric critical care

CA Richards, H Starks, MR O'Connor… - American Journal of …, 2018 - journals.sagepub.com
Background: Most children die in neonatal and pediatric intensive care units after decisions
are made to withhold or withdraw life-sustaining treatments. These decisions can be …

End-of-life decision-making and satisfaction with care: parental perspectives

KL Meert, CS Thurston, AP Sarnaik - Pediatric Critical Care …, 2000 - journals.lww.com
Objectives To evaluate parents' perceptions of the process by which decisions are made to
limit or withdraw life support from critically ill children, and to evaluate parents' perceptions of …

Parental decision-making preferences in the pediatric intensive care unit

VN Madrigal, KW Carroll, KR Hexem… - Critical care …, 2012 - journals.lww.com
Objective: To assess parental decision-making preferences in the high-stress environment
of the pediatric intensive care unit and test whether preferences vary with demographics …

What influences parents' decisions to limit or withdraw life support?

M Sharman, KL Meert, AP Sarnaik - Pediatric Critical Care …, 2005 - journals.lww.com
Objective: Decisions to forgo life support from critically ill children are commonly faced by
parents and physicians. Previous research regarding parents' perspectives on the decision …

Parental decision-making preferences in neonatal intensive care

EM Weiss, FK Barg, N Cook, E Black, S Joffe - The Journal of pediatrics, 2016 - Elsevier
Objective To explore how characteristics of medical decisions influence parents' preferences
for control over decisions for their seriously ill infants. Study design In qualitative interviews …

Characteristics associated with preferences for parent-centered decision making in neonatal intensive care

EM Weiss, D Xie, N Cook, K Coughlin, S Joffe - JAMA pediatrics, 2018 - jamanetwork.com
Importance Little is known about how characteristics of particular clinical decisions influence
decision-making preferences by patients or their surrogates. A better understanding of the …

Caregiver decision-making for terminally ill children: a qualitative study

E Pinto Taylor, B Doolittle - Journal of palliative care, 2020 - journals.sagepub.com
Introduction: Many children are born with life-limiting illnesses. Medical decision-making for
these children by caregivers is complex and causes significant psychosocial distress, which …

Medical indication regarding life-sustaining treatment for children: Focus groups with clinicians

JD Lotz, RJ Jox, C Meurer, GD Borasio… - Palliative …, 2016 - journals.sagepub.com
Background: Decisions about medical indication are a relevant problem in pediatrics.
Difficulties arise from the high prognostic uncertainty, the decisional incapacity of many …

How doctors actually (do not) involve families in decisions to continue or discontinue life-sustaining treatment in neonatal, pediatric, and adult intensive care: a …

A Akkermans, J Lamerichs, MJ Schultz… - Palliative …, 2021 - journals.sagepub.com
Background: Intensive care doctors have to find the right balance between sharing crucial
decisions with families of patients on the one hand and not overburdening them on the other …

The parent perspective:“being a good parent” when making critical decisions in the PICU

TW October, KR Fisher, C Feudtner… - Pediatric Critical Care …, 2014 - journals.lww.com
Objective: To identify factors important to parents making decisions for their critically ill child.
Design: Prospective cross-sectional study. Setting: Single center, tertiary care PICU …