Genetic privacy and non-discrimination.

R Casabona - Revista de Derecho y Genoma Humano= Law and …, 2011 - europepmc.org
The UN Inter-Agency Committee on Bioethics met for its tenth meeting at the UNESCO
headquarters in Paris on 4-5th March 2011. Member organisations such as the WHO and …

Privacy and genetic information

HA Lubs - Biomedical ethics and the law, 1979 - Springer
Invasion of privacy is decried on the streets and discussed in academic halls. The
preservation of privacy is almost a holy cause in the United States and, indeed, it is …

Privacy and property? Multi-level strategies for protecting personal interests in genetic material

G Laurie - 2003 - era.ed.ac.uk
The paper builds on earlier medico-legal work by Laurie on privacy in relation to genetic
material. In this chapter, the author discusses not only Laurie's views as' pro-privacy'but the …

Three decades of genetic privacy: a metaphoric journey

BM Knoppers, MJS Beauvais - Human Molecular Genetics, 2021 - academic.oup.com
Debates surrounding genetic privacy have taken on different forms over the past 30 years.
Taking genetic privacy to mean an interest that individuals, families, or even communities …

[引用][C] Genetic secrets: protecting privacy and confidentiality in the genetic era

MA Rothstein - 1997 - Yale University Press

Can you keep a (genetic) secret? The genetic privacy movement

M Everett - Journal of genetic counseling, 2004 - Wiley Online Library
This paper reviews the literature on genetic privacy, especially since 1995 and the first
proposal for national genetic privacy legislation. Since that time, a majority of states have …

The idea of a right to genetic privacy

T Spaak - Juridisk tidskrift, 2008 - papers.ssrn.com
The question I want to consider in this article is whether the idea of a right to genetic privacy
can be a useful analytical tool in the analysis of moral or legal problems that concern genetic …

[引用][C] What—If Anything—Is Special about “Genetic Privacy”?

JJL Chin, AV Campbell - Genetic Privacy: An Evaluation of the …, 2013 - World Scientific
The following sections are included: INTRODUCTION SHOULD THERE BE A SPECIAL
CLASS OF PRIVACY NAMED “GENETIC PRIVACY”? A THEORY OF INFORMATION …

The right to know and the right not to know: the emerging debate

R Chadwick, M Levitt, D Shickle - The right to know and the right …, 2014 - books.google.com
In this chapter we aim to outline some of the ways in which the debate over the right to know
and the right not to know has moved on since this book was first published in 1997. The …

Genetics and insurance: Accessing and using private information

AM Capron - Social Philosophy and Policy, 2000 - cambridge.org
Is information about a person's genome, whether derived from the analysis of DNA or
otherwise, protected by the right to privacy? If it is, why and in what manner? It often appears …