Using a participatory learning and action (PLA) research approach to involve people with aphasia as co-researchers in service evaluation: An analysis of co …
R McMenamin, E Tierney, A MacFarlane - Aphasiology, 2018 - Taylor & Francis
Background: Qualitative research methodologies are increasingly used to capture and
promote our understanding of health and illness experiences. However, two specific …
promote our understanding of health and illness experiences. However, two specific …
Who decides what criteria are important to consider in exploring the outcomes of conversation approaches? A participatory health research study
R Mc Menamin, E Tierney, A Mac Farlane - Aphasiology, 2015 - Taylor & Francis
Background: One of the most devastating consequences of aphasia is the disruption to
normal conversation. The Conversation Partner Programme emphasises communicative …
normal conversation. The Conversation Partner Programme emphasises communicative …
Development of an “aphasia-accessible participant in research experience survey” through co-production
C Shiggins, D Coe, L Gilbert… - Aphasiology, 2022 - Taylor & Francis
Introduction Feedback is essential for the development and enhancement of processes.
Everyone who participates in research should have the opportunity to provide feedback on …
Everyone who participates in research should have the opportunity to provide feedback on …
Working together: Experiences of people with aphasia as co-researchers in participatory health research studies
R McMenamin, M Griffin, B Grzybowska, C Pound - Aphasiology, 2021 - Taylor & Francis
Background: People with aphasia have been engaging with research in a variety of ways.
There are few descriptions of how they are involved in participatory research methodologies …
There are few descriptions of how they are involved in participatory research methodologies …
Addressing the long-term impacts of aphasia: how far does the Conversation Partner Programme go?
R Mc Menamin, E Tierney, A Mac Farlane - Aphasiology, 2015 - Taylor & Francis
Background: Approximately 176,000 new individuals in the United Kingdom and Ireland are
diagnosed with stroke annually with up to one third experiencing aphasia. Qualitative …
diagnosed with stroke annually with up to one third experiencing aphasia. Qualitative …
The views of people living with chronic stroke and aphasia on their potential involvement as research partners: a thematic analysis
M Charalambous, A Kountouri, P Phylactou… - Research Involvement …, 2022 - Springer
Abstract Background Patient and Public Involvement (PPI) is the active partnership between
researchers, patients and laypeople in the process of creating research. PPI in stroke …
researchers, patients and laypeople in the process of creating research. PPI in stroke …
The development of the People with Aphasia and Other Layperson Involvement (PAOLI) framework for guiding patient and public involvement (PPI) in aphasia …
M Charalambous, A Kountouri, JR Schwyter… - Research Involvement …, 2023 - Springer
Abstract Background Patient and Public Involvement (PPI) in aphasia research requires
researchers to include people with aphasia as research partners from the beginning of the …
researchers to include people with aphasia as research partners from the beginning of the …
Understanding experiences, unmet needs and priorities related to post-stroke aphasia care: stage one of an experience-based co-design project
LN Anemaat, VJ Palmer, DA Copland, G Binge… - BMJ open, 2024 - bmjopen.bmj.com
Objective People with post-stroke aphasia (language/communication impairment) and their
supporters report mixed satisfaction with stroke and aphasia care. To date, however, their …
supporters report mixed satisfaction with stroke and aphasia care. To date, however, their …
In it for the long haul: a reflective account of collaborative involvement in aphasia research and education
S Horton, D Barnston, J Barnston, C Bell, J Bell… - Aphasiology, 2021 - Taylor & Francis
Background: The involvement of service users and supporters/advocates in healthcare
education and healthcare research has developed an increasingly high profile in recent …
education and healthcare research has developed an increasingly high profile in recent …
[HTML][HTML] The challenges of including patients with aphasia in qualitative research for health service redesign: qualitative interview study
S Prior, A Miller, S Campbell, K Linegar… - Journal of participatory …, 2020 - jopm.jmir.org
Background: Aphasia is an impairment of language, affecting the production or
comprehension of speech and the ability to read or write. Aphasia is a frequent complication …
comprehension of speech and the ability to read or write. Aphasia is a frequent complication …