Genetic information and life insurance: a 'real'risk?

Y Joly, BM Knoppers, B Godard - European Journal of Human Genetics, 2003 - nature.com
Public concern about genetic discrimination, particularly access to insurance following
genetic testing, has been reported in the literature. This paper aims to separate myths from …

Genetic discrimination and life insurance: a systematic review of the evidence

Y Joly, I Ngueng Feze, J Simard - BMC medicine, 2013 - Springer
Background Since the late 1980s, genetic discrimination has remained one of the major
concerns associated with genetic research and clinical genetics. Europe has adopted a …

Is genetic information relevantly different from other kinds of non-genetic information in the life insurance context?

PJ Malpas - Journal of medical ethics, 2008 - jme.bmj.com
Within the medical, legal and bioethical literature, there has been an increasing concern that
the information derived from genetic tests may be used to unfairly discriminate against …

Genetics and life insurance: a comparative analysis

T Lemmens, Y Joly, BM Knoppers - 2004 - papers.ssrn.com
The debate surrounding the role of life insurance, the necessity of risk rating, and the notion
of “acceptable discrimination” has raised questions about the larger social role of insurance …

Genetics and insurance discrimination: comparative legislative, regulatory and policy developments and Canadian options

T Lemmens - Regulatory and Policy Developments and Canadian …, 2003 - papers.ssrn.com
Whether insurance companies should have access to genetic test results of insurance
applicants and/or should be allowed to impose such testing as part of insurance …

“Uninsurable because of a genetic test”: a qualitative study of consumer views about the use of genetic test results in Australian life insurance

C Muller, L Gallacher, L Keogh… - European Journal of …, 2024 - nature.com
Genetic testing can provide valuable information to mitigate personal disease risk, but the
use of genetic results in life insurance underwriting is known to deter many consumers from …

Genetic Discrimination in Access to Life Insurance: Does Ukrainian Legislation Offer Sufficient Protection against the Adverse Consequences of the Genetic …

M Arych, Y Joly - Laws, 2021 - mdpi.com
This paper presents an inter-disciplinary study of the risk for, and protections against,
genetic discrimination in access to life insurance in Ukraine. It aims (i) to review questions …

Community concerns about genetic discrimination in life insurance persist in Australia: A survey of consumers offered genetic testing

J Tiller, A Bakshi, G Dowling, L Keogh… - European Journal of …, 2024 - nature.com
Fears of genetic discrimination in life insurance continue to deter some Australians from
genetic testing. In July 2019, the life insurance industry introduced a partial, self-regulated …

Potential for genetic discrimination in access to insurance: is there a dark side to increased availability of genetic information?

E Adjin-Tettey - Alberta Law Review, 2013 - papers.ssrn.com
This article addresses the reliance on genetic information as part of the private insurance
industry's practice of risk segmentation whereby underwriting decisions are based on risk …

Genetic discrimination in private insurance: global perspectives

Y Joly, M Braker, M Le Huynh - New genetics and society, 2010 - Taylor & Francis
In an era of personalized medicine rife with population databases and international
consortia, genetic discrimination is once again moving to the forefront of the genetics policy …